Publication Information

{'id': 'https://openalex.org/W2901967497', 'doi': 'https://doi.org/10.1093/bmb/ldy038', 'title': 'The impact of the General Data Protection Regulation on health research', 'display_name': 'The impact of the General Data Protection Regulation on health research', 'publication_year': 2018, 'publication_date': '2018-10-22', 'ids': {'openalex': 'https://openalex.org/W2901967497', 'doi': 'https://doi.org/10.1093/bmb/ldy038', 'mag': '2901967497', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/30445448'}, 'language': 'en', 'primary_location': {'is_oa': True, 'landing_page_url': 'https://doi.org/10.1093/bmb/ldy038', 'pdf_url': 'https://academic.oup.com/bmb/article-pdf/128/1/109/28035632/ldy038.pdf', 'source': {'id': 'https://openalex.org/S163102221', 'display_name': 'British Medical Bulletin', 'issn_l': '0007-1420', 'issn': ['0007-1420', '1471-8391'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310311648', 'host_organization_name': 'Oxford University Press', 'host_organization_lineage': ['https://openalex.org/P4310311647', 'https://openalex.org/P4310311648'], 'host_organization_lineage_names': ['University of Oxford', 'Oxford University Press'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, 'type': 'review', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': True, 'oa_status': 'bronze', 'oa_url': 'https://academic.oup.com/bmb/article-pdf/128/1/109/28035632/ldy038.pdf', 'any_repository_has_fulltext': False}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5084294393', 'display_name': 'Victoria Chico', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I91136226', 'display_name': 'University of Sheffield', 'ror': 'https://ror.org/05krs5044', 'country_code': 'GB', 'type': 'education', 'lineage': ['https://openalex.org/I91136226']}], 'countries': ['GB'], 'is_corresponding': True, 'raw_author_name': 'Victoria Chico', 'raw_affiliation_strings': ['School of Law, University of Sheffield, Bartolome House, Winter Street, Sheffield, UK'], 'affiliations': [{'raw_affiliation_string': 'School of Law, University of Sheffield, Bartolome House, Winter Street, Sheffield, UK', 'institution_ids': ['https://openalex.org/I91136226']}]}], 'institution_assertions': [], 'countries_distinct_count': 1, 'institutions_distinct_count': 1, 'corresponding_author_ids': ['https://openalex.org/A5084294393'], 'corresponding_institution_ids': ['https://openalex.org/I91136226'], 'apc_list': {'value': 3029, 'currency': 'GBP', 'value_usd': 3715, 'provenance': 'doaj'}, 'apc_paid': None, 'fwci': 2.19, 'has_fulltext': True, 'fulltext_origin': 'ngrams', 'cited_by_count': 76, 'citation_normalized_percentile': {'value': 0.586791, 'is_in_top_1_percent': False, 'is_in_top_10_percent': False}, 'cited_by_percentile_year': {'min': 97, 'max': 98}, 'biblio': {'volume': '128', 'issue': '1', 'first_page': '109', 'last_page': '118'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T10582', 'display_name': 'Ethics in Clinical Research', 'score': 0.9836, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, 'topics': [{'id': 'https://openalex.org/T10582', 'display_name': 'Ethics in Clinical Research', 'score': 0.9836, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, {'id': 'https://openalex.org/T13048', 'display_name': 'Patient Dignity and Privacy', 'score': 0.9659, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}], 'keywords': [{'id': 'https://openalex.org/keywords/directive', 'display_name': 'Directive', 'score': 0.72124666}], 'concepts': [{'id': 'https://openalex.org/C3090818', 'wikidata': 'https://www.wikidata.org/wiki/Q1172506', 'display_name': 'General Data Protection Regulation', 'level': 3, 'score': 0.9080222}, {'id': 'https://openalex.org/C69360830', 'wikidata': 'https://www.wikidata.org/wiki/Q1172237', 'display_name': 'Data Protection Act 1998', 'level': 2, 'score': 0.86069083}, {'id': 'https://openalex.org/C52487910', 'wikidata': 'https://www.wikidata.org/wiki/Q911488', 'display_name': 'Data Protection Directive', 'level': 4, 'score': 0.75530845}, {'id': 'https://openalex.org/C2779547435', 'wikidata': 'https://www.wikidata.org/wiki/Q1121492', 'display_name': 'Directive', 'level': 2, 'score': 0.72124666}, {'id': 'https://openalex.org/C78524284', 'wikidata': 'https://www.wikidata.org/wiki/Q6031155', 'display_name': 'Information privacy law', 'level': 4, 'score': 0.6488193}, {'id': 'https://openalex.org/C2910001868', 'wikidata': 'https://www.wikidata.org/wiki/Q458', 'display_name': 'European union', 'level': 2, 'score': 0.62151015}, {'id': 'https://openalex.org/C2777351106', 'wikidata': 'https://www.wikidata.org/wiki/Q49371', 'display_name': 'Legislation', 'level': 2, 'score': 0.5480112}, {'id': 'https://openalex.org/C123201435', 'wikidata': 'https://www.wikidata.org/wiki/Q456632', 'display_name': 'Information privacy', 'level': 2, 'score': 0.54545313}, {'id': 'https://openalex.org/C144133560', 'wikidata': 'https://www.wikidata.org/wiki/Q4830453', 'display_name': 'Business', 'level': 0, 'score': 0.53570807}, {'id': 'https://openalex.org/C135522663', 'wikidata': 'https://www.wikidata.org/wiki/Q1744072', 'display_name': 'Directive on Privacy and Electronic Communications', 'level': 5, 'score': 0.52558833}, {'id': 'https://openalex.org/C163981777', 'wikidata': 'https://www.wikidata.org/wiki/Q5427184', 'display_name': 'FTC Fair Information Practice', 'level': 5, 'score': 0.48311663}, {'id': 'https://openalex.org/C141972696', 'wikidata': 'https://www.wikidata.org/wiki/Q1247836', 'display_name': 'Privacy law', 'level': 4, 'score': 0.45425582}, {'id': 'https://openalex.org/C102938260', 'wikidata': 'https://www.wikidata.org/wiki/Q1999831', 'display_name': 'Privacy policy', 'level': 3, 'score': 0.3732072}, {'id': 'https://openalex.org/C108827166', 'wikidata': 'https://www.wikidata.org/wiki/Q175975', 'display_name': 'Internet privacy', 'level': 1, 'score': 0.32455665}, {'id': 'https://openalex.org/C17744445', 'wikidata': 'https://www.wikidata.org/wiki/Q36442', 'display_name': 'Political science', 'level': 0, 'score': 0.284378}, {'id': 'https://openalex.org/C199539241', 'wikidata': 'https://www.wikidata.org/wiki/Q7748', 'display_name': 'Law', 'level': 1, 'score': 0.26803768}, {'id': 'https://openalex.org/C115314567', 'wikidata': 'https://www.wikidata.org/wiki/Q208202', 'display_name': 'European Union law', 'level': 3, 'score': 0.1993657}, {'id': 'https://openalex.org/C41008148', 'wikidata': 'https://www.wikidata.org/wiki/Q21198', 'display_name': 'Computer science', 'level': 0, 'score': 0.14626187}, {'id': 'https://openalex.org/C155202549', 'wikidata': 'https://www.wikidata.org/wiki/Q178803', 'display_name': 'International trade', 'level': 1, 'score': 0.14038861}, {'id': 'https://openalex.org/C199360897', 'wikidata': 'https://www.wikidata.org/wiki/Q9143', 'display_name': 'Programming language', 'level': 1, 'score': 0.0}], 'mesh': [{'descriptor_ui': 'D035843', 'descriptor_name': 'Biomedical Research', 'qualifier_ui': 'Q000331', 'qualifier_name': 'legislation & jurisprudence', 'is_major_topic': True}, {'descriptor_ui': 'D016494', 'descriptor_name': 'Computer Security', 'qualifier_ui': 'Q000331', 'qualifier_name': 'legislation & jurisprudence', 'is_major_topic': True}, {'descriptor_ui': 'D003219', 'descriptor_name': 'Confidentiality', 'qualifier_ui': 'Q000331', 'qualifier_name': 'legislation & jurisprudence', 'is_major_topic': True}, {'descriptor_ui': 'D016208', 'descriptor_name': 'Databases, Factual', 'qualifier_ui': 'Q000331', 'qualifier_name': 'legislation & jurisprudence', 'is_major_topic': True}, {'descriptor_ui': 'D005062', 'descriptor_name': 'European Union', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D035843', 'descriptor_name': 'Biomedical Research', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D016494', 'descriptor_name': 'Computer Security', 'qualifier_ui': 'Q000941', 'qualifier_name': 'ethics', 'is_major_topic': False}, {'descriptor_ui': 'D016494', 'descriptor_name': 'Computer Security', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D003219', 'descriptor_name': 'Confidentiality', 'qualifier_ui': 'Q000941', 'qualifier_name': 'ethics', 'is_major_topic': False}, {'descriptor_ui': 'D003219', 'descriptor_name': 'Confidentiality', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D016208', 'descriptor_name': 'Databases, Factual', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D055991', 'descriptor_name': 'Health Records, Personal', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D018973', 'descriptor_name': 'Intellectual Property', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}], 'locations_count': 2, 'locations': [{'is_oa': True, 'landing_page_url': 'https://doi.org/10.1093/bmb/ldy038', 'pdf_url': 'https://academic.oup.com/bmb/article-pdf/128/1/109/28035632/ldy038.pdf', 'source': {'id': 'https://openalex.org/S163102221', 'display_name': 'British Medical Bulletin', 'issn_l': '0007-1420', 'issn': ['0007-1420', '1471-8391'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310311648', 'host_organization_name': 'Oxford University Press', 'host_organization_lineage': ['https://openalex.org/P4310311647', 'https://openalex.org/P4310311648'], 'host_organization_lineage_names': ['University of Oxford', 'Oxford University Press'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/30445448', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': {'is_oa': True, 'landing_page_url': 'https://doi.org/10.1093/bmb/ldy038', 'pdf_url': 'https://academic.oup.com/bmb/article-pdf/128/1/109/28035632/ldy038.pdf', 'source': {'id': 'https://openalex.org/S163102221', 'display_name': 'British Medical Bulletin', 'issn_l': '0007-1420', 'issn': ['0007-1420', '1471-8391'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310311648', 'host_organization_name': 'Oxford University Press', 'host_organization_lineage': ['https://openalex.org/P4310311647', 'https://openalex.org/P4310311648'], 'host_organization_lineage_names': ['University of Oxford', 'Oxford University Press'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, 'sustainable_development_goals': [], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 0, 'referenced_works': [], 'related_works': ['https://openalex.org/W624257295', 'https://openalex.org/W585674428', 'https://openalex.org/W3133531941', 'https://openalex.org/W3122316262', 'https://openalex.org/W2901967497', 'https://openalex.org/W2799236100', 'https://openalex.org/W265982320', 'https://openalex.org/W2563356949', 'https://openalex.org/W2516883919', 'https://openalex.org/W1588560060'], 'abstract_inverted_index': {'On': [0], 'the': [1, 5, 11, 14, 20, 27, 42, 51, 54, 81, 89, 101, 121, 123, 129, 133, 154, 157, 172, 175, 209, 227, 253, 266, 270, 273, 284, 287, 309, 314, 317, 331, 344, 350, 353, 364, 367, 370, 373, 378], 'May': [2, 96], '25,': [3], '2018': [4], 'General': [6], 'Data': [7, 21, 28, 124, 134], 'Protection': [8, 22, 29, 125, 135], 'Regulation': [9, 55, 60, 100, 139, 155, 170, 288, 318, 371], '(hereafter': [10], 'GDPR': [12, 90, 102], 'or': [13], 'Regulation)': [15], 'came': [16], 'into': [17], 'force,': [18], 'replacing': [19], 'Directive': [23, 136], '95/46/EC': [24], '(upon': [25], 'which': [26, 40, 115, 306, 341, 347], 'Act': [30, 126], '1998': [31, 127], 'is': [32, 103, 140, 195, 232, 290, 335], 'based),': [33], 'and': [34, 71, 78, 244, 324, 328, 377], 'imposing': [35], 'new': [36], 'responsibilities': [37], 'on': [38, 56, 146, 343], 'organizations': [39, 84, 147, 293], 'process': [41, 295], 'data': [43, 64, 76, 86, 178, 216, 231, 297], 'of': [44, 53, 159, 177, 211, 229, 255, 261, 269, 311, 316, 352, 366, 369, 375], 'European': [45], 'Union': [46], 'citizens.': [47], 'This': [48], 'piece': [49], 'examines': [50], 'impact': [52, 145], 'health': [57, 321, 332, 357], 'research.': [58], 'The': [59, 138, 169], 'seeks': [61], 'to': [62, 69, 79, 112, 182, 208, 239, 275, 302, 337, 356], 'harmonize': [63], 'privacy': [65, 77, 87], 'laws': [66], 'across': [67, 320, 325, 330, 382], 'Europe,': [68], 'protect': [70], 'empower': [72], 'all': [73, 107], 'EU': [74], "citizen's": [75], 'reshape': [80], 'way': [82], 'that': [83, 167, 174, 201, 215, 294], 'approach': [85, 204], '(See': [88], 'portal': [91], 'at:': [92], 'https://www.eugdpr.org/': [93], '(accessed': [94], '8': [95], '2018).': [97], 'As': [98], 'a': [99, 113, 202, 280], 'directly': [104], 'applicable': [105], 'in': [106, 163, 237, 242, 250, 283, 349, 363, 380], 'member': [108], 'states': [109], 'as': [110, 224], 'opposed': [111], 'directive': [114], 'requires': [116], 'national': [117], 'implementing': [118, 130], 'measures': [119, 305], '(In': [120], 'UK': [122], 'was': [128], 'legislation': [131], 'for': [132, 220, 292, 298], '95/46/EC.).': [137], 'sector': [141, 149, 334], 'wide,': [142], 'but': [143, 235], 'its': [144, 240], 'us': [148], 'specific.': [150], 'In': [151], 'some': [152], 'sectors,': [153], 'inhibits': [156], 'processing': [158], 'personal': [160, 212, 230, 296], 'data,': [161, 213], 'whilst': [162], 'others': [164], 'it': [165, 188, 199], 'enables': [166], 'processing.': [168], 'takes': [171], 'position': [173, 282], "'processing": [176], 'should': [179], 'be': [180, 206, 218, 360], 'designed': [181], 'serve': [183], "mankind'": [184], '(Recital': [185, 257], '4).': [186, 258], 'Whilst': [187], 'does': [189], 'not': [190, 233], 'spell': [191], 'out': [192], 'what': [193], 'exactly': [194], 'meant': [196], 'by': [197], 'this,': [198], 'indicates': [200], 'proportionate': [203], 'will': [205], 'taken': [207], 'protection': [210, 228], 'where': [214], 'can': [217, 263], 'processed': [219], 'common': [221], 'goods': [222], 'such': [223], 'healthcare.': [225], 'Thus,': [226], 'absolute,': [234], 'considered': [236], 'relation': [238], 'function': [241], 'society': [243], 'balance': [245], 'with': [246, 252], 'other': [247], 'fundamental': [248], 'rights': [249], 'accordance': [251], 'principle': [254], 'proportionality': [256, 262], 'Differing': [259], 'interpretations': [260], 'detract': [264], 'from': [265], 'harmonization': [267], 'objective': [268], 'Regulation.': [271, 285], 'Reflecting': [272], 'commitment': [274], 'proportionality,': [276], 'scientific': [277, 299], 'research': [278, 300, 322, 333, 358], 'holds': [279], 'privileged': [281], 'Throughout': [286], 'provision': [289], 'made': [291], 'purposes': [301], 'avoid': [303], 'restrictive': [304], 'might': [307], 'impede': [308], 'increase': [310], 'knowledge.': [312], 'However,': [313], 'application': [315, 355], 'differs': [319], 'sectors': [323], 'jurisdictions.': [326], 'Transparency': [327], 'engagement': [329], 'required': [336], 'promote': [338], 'alignment.': [339], 'Research': [340], 'focuses': [342], 'particular': [345], 'problems': [346], 'arise': [348], 'context': [351, 365], "regulation's": [354], 'would': [359], 'welcome.': [361], 'Particularly': [362], 'operation': [368], 'alongside': [372], 'duty': [374], 'confidentiality': [376], 'variation': [379], 'approaches': [381], 'Member': [383], 'States.': [384]}, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W2901967497', 'counts_by_year': [{'year': 2024, 'cited_by_count': 13}, {'year': 2023, 'cited_by_count': 14}, {'year': 2022, 'cited_by_count': 6}, {'year': 2021, 'cited_by_count': 29}, {'year': 2020, 'cited_by_count': 10}, {'year': 2019, 'cited_by_count': 4}], 'updated_date': '2025-01-08T20:03:29.292929', 'created_date': '2018-11-29'}