Title: An investigation of autistic opinions about autism-related genomic research.
Abstract: Genomic studies of autism are a heavily debated, often controversial, topic, with the recently launched Spectrum 10k study postponed in response to backlash from the autism community. Opinions of autistic individuals have rarely been gathered in relation to research priorities - particularly in relation to genomic autism research. This study sought to gather opinions about genomic studies of autism from late-diagnosed autistic adults.This research was part of the Personal Experiences of Autism and Perceptions Of DNA-based [PEAPOD] research at the University of York. It consisted of 22 semi-structured interviews with autistic adults residing in the UK. The study used multiple methods of data collection. Interviews were transcribed, where appropriate, and thematically analysed.Multiple opinions are represented within this research, covering a number of topics, including the impact of historic and current practice on trust; ethical considerations such as the use of data in future studies; and representation of the autistic voice within research.