Get quick answers to your questions about the article from our AI researcher chatbot
{'id': 'https://openalex.org/W2227393071', 'doi': 'https://doi.org/10.1177/1362361315588200', 'title': 'Which terms should be used to describe autism? Perspectives from the UK autism community', 'display_name': 'Which terms should be used to describe autism? Perspectives from the UK autism community', 'publication_year': 2015, 'publication_date': '2015-07-01', 'ids': {'openalex': 'https://openalex.org/W2227393071', 'doi': 'https://doi.org/10.1177/1362361315588200', 'mag': '2227393071', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/26134030'}, 'language': 'en', 'primary_location': {'is_oa': False, 'landing_page_url': 'https://doi.org/10.1177/1362361315588200', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S1824407', 'display_name': 'Autism', 'issn_l': '1362-3613', 'issn': ['1362-3613', '1461-7005'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310320017', 'host_organization_name': 'SAGE Publishing', 'host_organization_lineage': ['https://openalex.org/P4310320017'], 'host_organization_lineage_names': ['SAGE Publishing'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, 'type': 'article', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': False, 'oa_status': 'closed', 'oa_url': None, 'any_repository_has_fulltext': False}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5081691129', 'display_name': 'Lorcan Kenny', 'orcid': 'https://orcid.org/0000-0002-5877-8099'}, 'institutions': [{'id': 'https://openalex.org/I45129253', 'display_name': 'University College London', 'ror': 'https://ror.org/02jx3x895', 'country_code': 'GB', 'type': 'education', 'lineage': ['https://openalex.org/I124357947', 'https://openalex.org/I45129253']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'Lorcan Kenny', 'raw_affiliation_strings': ['Centre for Research in Autism and Education, UCL Institute of Education, University College London, UK'], 'affiliations': [{'raw_affiliation_string': 'Centre for Research in Autism and Education, UCL Institute of Education, University College London, UK', 'institution_ids': ['https://openalex.org/I45129253']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5066012151', 'display_name': 'Caroline Hattersley', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I4210108787', 'display_name': 'The National Autistic Society', 'ror': 'https://ror.org/01g3gak55', 'country_code': 'GB', 'type': 'nonprofit', 'lineage': ['https://openalex.org/I4210108787']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'Caroline Hattersley', 'raw_affiliation_strings': ['Providence Row, UK', 'The National Autistic Society, UK'], 'affiliations': [{'raw_affiliation_string': 'Providence Row, UK', 'institution_ids': []}, {'raw_affiliation_string': 'The National Autistic Society, UK', 'institution_ids': ['https://openalex.org/I4210108787']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5065147650', 'display_name': 'Bonnie Molins', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I4210108787', 'display_name': 'The National Autistic Society', 'ror': 'https://ror.org/01g3gak55', 'country_code': 'GB', 'type': 'nonprofit', 'lineage': ['https://openalex.org/I4210108787']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'Bonnie Molins', 'raw_affiliation_strings': ['The National Autistic Society, UK'], 'affiliations': [{'raw_affiliation_string': 'The National Autistic Society, UK', 'institution_ids': ['https://openalex.org/I4210108787']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5044467381', 'display_name': 'Carole Buckley', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I7780909', 'display_name': 'Royal College of General Practitioners', 'ror': 'https://ror.org/01gdbf303', 'country_code': 'GB', 'type': 'education', 'lineage': ['https://openalex.org/I7780909']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'Carole Buckley', 'raw_affiliation_strings': ['Royal College of General Practitioners, UK'], 'affiliations': [{'raw_affiliation_string': 'Royal College of General Practitioners, UK', 'institution_ids': ['https://openalex.org/I7780909']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5072842238', 'display_name': 'Carol Povey', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I4210108787', 'display_name': 'The National Autistic Society', 'ror': 'https://ror.org/01g3gak55', 'country_code': 'GB', 'type': 'nonprofit', 'lineage': ['https://openalex.org/I4210108787']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'Carol Povey', 'raw_affiliation_strings': ['The National Autistic Society, UK'], 'affiliations': [{'raw_affiliation_string': 'The National Autistic Society, UK', 'institution_ids': ['https://openalex.org/I4210108787']}]}, {'author_position': 'last', 'author': {'id': 'https://openalex.org/A5010278223', 'display_name': 'Elizabeth Pellicano', 'orcid': 'https://orcid.org/0000-0002-7246-8003'}, 'institutions': [{'id': 'https://openalex.org/I45129253', 'display_name': 'University College London', 'ror': 'https://ror.org/02jx3x895', 'country_code': 'GB', 'type': 'education', 'lineage': ['https://openalex.org/I124357947', 'https://openalex.org/I45129253']}, {'id': 'https://openalex.org/I177877127', 'display_name': 'University of Western Australia', 'ror': 'https://ror.org/047272k79', 'country_code': 'AU', 'type': 'education', 'lineage': ['https://openalex.org/I177877127']}], 'countries': ['AU', 'GB'], 'is_corresponding': True, 'raw_author_name': 'Elizabeth Pellicano', 'raw_affiliation_strings': ['Centre for Research in Autism and Education, UCL Institute of Education, University College London, UK', 'School of Psychology, University of Western Australia, Australia'], 'affiliations': [{'raw_affiliation_string': 'Centre for Research in Autism and Education, UCL Institute of Education, University College London, UK', 'institution_ids': ['https://openalex.org/I45129253']}, {'raw_affiliation_string': 'School of Psychology, University of Western Australia, Australia', 'institution_ids': ['https://openalex.org/I177877127']}]}], 'institution_assertions': [], 'countries_distinct_count': 2, 'institutions_distinct_count': 4, 'corresponding_author_ids': ['https://openalex.org/A5010278223'], 'corresponding_institution_ids': ['https://openalex.org/I45129253', 'https://openalex.org/I177877127'], 'apc_list': None, 'apc_paid': None, 'fwci': 29.411, 'has_fulltext': False, 'cited_by_count': 1520, 'citation_normalized_percentile': {'value': 0.999935, 'is_in_top_1_percent': True, 'is_in_top_10_percent': True}, 'cited_by_percentile_year': {'min': 99, 'max': 100}, 'biblio': {'volume': '20', 'issue': '4', 'first_page': '442', 'last_page': '462'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T10106', 'display_name': 'Autism Spectrum Disorder Research', 'score': 1.0, 'subfield': {'id': 'https://openalex.org/subfields/2805', 'display_name': 'Cognitive Neuroscience'}, 'field': {'id': 'https://openalex.org/fields/28', 'display_name': 'Neuroscience'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, 'topics': [{'id': 'https://openalex.org/T10106', 'display_name': 'Autism Spectrum Disorder Research', 'score': 1.0, 'subfield': {'id': 'https://openalex.org/subfields/2805', 'display_name': 'Cognitive Neuroscience'}, 'field': {'id': 'https://openalex.org/fields/28', 'display_name': 'Neuroscience'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, {'id': 'https://openalex.org/T11632', 'display_name': 'Family and Disability Support Research', 'score': 0.9983, 'subfield': {'id': 'https://openalex.org/subfields/3203', 'display_name': 'Clinical Psychology'}, 'field': {'id': 'https://openalex.org/fields/32', 'display_name': 'Psychology'}, 'domain': {'id': 'https://openalex.org/domains/2', 'display_name': 'Social Sciences'}}, {'id': 'https://openalex.org/T12207', 'display_name': 'Assistive Technology in Communication and Mobility', 'score': 0.9881, 'subfield': {'id': 'https://openalex.org/subfields/3609', 'display_name': 'Occupational Therapy'}, 'field': {'id': 'https://openalex.org/fields/36', 'display_name': 'Health Professions'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}], 'keywords': [], 'concepts': [{'id': 'https://openalex.org/C205778803', 'wikidata': 'https://www.wikidata.org/wiki/Q38404', 'display_name': 'Autism', 'level': 2, 'score': 0.98435223}, {'id': 'https://openalex.org/C15744967', 'wikidata': 'https://www.wikidata.org/wiki/Q9418', 'display_name': 'Psychology', 'level': 0, 'score': 0.7185271}, {'id': 'https://openalex.org/C138496976', 'wikidata': 'https://www.wikidata.org/wiki/Q175002', 'display_name': 'Developmental psychology', 'level': 1, 'score': 0.47125772}, {'id': 'https://openalex.org/C2778538070', 'wikidata': 'https://www.wikidata.org/wiki/Q1436063', 'display_name': 'Autism spectrum disorder', 'level': 3, 'score': 0.4155959}], 'mesh': [{'descriptor_ui': 'D001291', 'descriptor_name': 'Attitude of Health Personnel', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D001294', 'descriptor_name': 'Attitude to Health', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D000067877', 'descriptor_name': 'Autism Spectrum Disorder', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D001321', 'descriptor_name': 'Autistic Disorder', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D005190', 'descriptor_name': 'Family', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D006282', 'descriptor_name': 'Health Personnel', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D057240', 'descriptor_name': 'Patient Preference', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D009626', 'descriptor_name': 'Terminology as Topic', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D000293', 'descriptor_name': 'Adolescent', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D000328', 'descriptor_name': 'Adult', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D000368', 'descriptor_name': 'Aged', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D005260', 'descriptor_name': 'Female', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D033062', 'descriptor_name': 'Friends', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D008297', 'descriptor_name': 'Male', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D008875', 'descriptor_name': 'Middle Aged', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D011795', 'descriptor_name': 'Surveys and Questionnaires', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006113', 'descriptor_name': 'United Kingdom', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D055815', 'descriptor_name': 'Young Adult', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}], 'locations_count': 2, 'locations': [{'is_oa': False, 'landing_page_url': 'https://doi.org/10.1177/1362361315588200', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S1824407', 'display_name': 'Autism', 'issn_l': '1362-3613', 'issn': ['1362-3613', '1461-7005'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310320017', 'host_organization_name': 'SAGE Publishing', 'host_organization_lineage': ['https://openalex.org/P4310320017'], 'host_organization_lineage_names': ['SAGE Publishing'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/26134030', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': None, 'sustainable_development_goals': [], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 81, 'referenced_works': ['https://openalex.org/W1484141445', 'https://openalex.org/W1517802253', 'https://openalex.org/W1523860101', 'https://openalex.org/W1530582387', 'https://openalex.org/W1553138411', 'https://openalex.org/W1554356849', 'https://openalex.org/W1562422378', 'https://openalex.org/W1597860757', 'https://openalex.org/W1829568558', 'https://openalex.org/W183375648', 'https://openalex.org/W1964359714', 'https://openalex.org/W1971659941', 'https://openalex.org/W1973556359', 'https://openalex.org/W1979290264', 'https://openalex.org/W1981795749', 'https://openalex.org/W1988388620', 'https://openalex.org/W1989287842', 'https://openalex.org/W1995931969', 'https://openalex.org/W1997978964', 'https://openalex.org/W2001251954', 'https://openalex.org/W2007014703', 'https://openalex.org/W2010051322', 'https://openalex.org/W2012011892', 'https://openalex.org/W2022768097', 'https://openalex.org/W2024807675', 'https://openalex.org/W2024882132', 'https://openalex.org/W2027036349', 'https://openalex.org/W2027981354', 'https://openalex.org/W2029915710', 'https://openalex.org/W2032506266', 'https://openalex.org/W2036825287', 'https://openalex.org/W2044983927', 'https://openalex.org/W2045960328', 'https://openalex.org/W2046265374', 'https://openalex.org/W2050006242', 'https://openalex.org/W2050405400', 'https://openalex.org/W2055673534', 'https://openalex.org/W2057181562', 'https://openalex.org/W2073740065', 'https://openalex.org/W2076107462', 'https://openalex.org/W2085448344', 'https://openalex.org/W2086675844', 'https://openalex.org/W2095258249', 'https://openalex.org/W2103314478', 'https://openalex.org/W2114574901', 'https://openalex.org/W2119717901', 'https://openalex.org/W2121327279', 'https://openalex.org/W2124715426', 'https://openalex.org/W2125408049', 'https://openalex.org/W2130225110', 'https://openalex.org/W2130225517', 'https://openalex.org/W2134002475', 'https://openalex.org/W2142098199', 'https://openalex.org/W2151812566', 'https://openalex.org/W2155427676', 'https://openalex.org/W2159011576', 'https://openalex.org/W2163976084', 'https://openalex.org/W2255119171', 'https://openalex.org/W2307938957', 'https://openalex.org/W2329520065', 'https://openalex.org/W2412980620', 'https://openalex.org/W2506989308', 'https://openalex.org/W2513944026', 'https://openalex.org/W265289460', 'https://openalex.org/W2895706133', 'https://openalex.org/W2950687800', 'https://openalex.org/W2976773352', 'https://openalex.org/W3004530520', 'https://openalex.org/W3022730379', 'https://openalex.org/W3110124371', 'https://openalex.org/W3150120149', 'https://openalex.org/W3216633854', 'https://openalex.org/W4206574276', 'https://openalex.org/W4210957923', 'https://openalex.org/W4240674930', 'https://openalex.org/W4248918353', 'https://openalex.org/W4297361601', 'https://openalex.org/W4301723980', 'https://openalex.org/W4302032163', 'https://openalex.org/W606118699', 'https://openalex.org/W84573813'], 'related_works': ['https://openalex.org/W4402326599', 'https://openalex.org/W4391375266', 'https://openalex.org/W4310092953', 'https://openalex.org/W4280602684', 'https://openalex.org/W3133980636', 'https://openalex.org/W2748952813', 'https://openalex.org/W2227393071', 'https://openalex.org/W2166141227', 'https://openalex.org/W2082102603', 'https://openalex.org/W1995350144'], 'abstract_inverted_index': {'Recent': [0], 'public': [1], 'discussions': [2], 'suggest': [3], 'that': [4, 77, 176, 185, 197], 'there': [5, 107, 177], 'is': [6, 13, 178, 186], 'much': [7], 'disagreement': [8], 'about': [9, 42], 'the': [10, 23, 43, 94, 118, 168, 192], 'way': [11, 181], 'autism': [12, 29, 66, 95, 184, 194], 'and': [14, 25, 36, 67, 92, 97, 137, 159, 189, 196], 'should': [15], 'be': [16], 'described.': [17], 'This': [18], 'study': [19], 'sought': [20], 'to': [21, 47, 56, 82, 98], 'elicit': [22], 'views': [24], 'preferences': [26], 'of': [27, 64, 120, 132, 152, 163, 182], 'UK': [28, 53], 'community': [30, 111, 195], 'members': [31], '-': [32, 41], 'autistic': [33, 133, 157], 'people,': [34], 'parents': [35, 138], 'their': [37, 61, 68], 'broader': [38], 'support': [39], 'network': [40], 'terms': [44, 81, 89], 'they': [45], 'use': [46, 79, 119], 'describe': [48, 83], 'autism.': [49, 84], 'In': [50], 'all,': [51], '3470': [52], 'residents': [54], 'responded': [55], 'an': [57, 164], 'online': [58], 'survey': [59], 'on': [60, 117], 'preferred': [62, 190], 'ways': [63], 'describing': [65, 183], 'rationale': [69], 'for': [70, 105], 'such': [71], 'preferences.': [72, 172], 'The': [73, 85, 113, 123], 'results': [74], 'clearly': [75], 'show': [76], 'people': [78], 'many': [80], 'most': [86], 'highly': [87], 'endorsed': [88, 127, 148], 'were': [90], "'autism'": [91], "'on": [93], "spectrum',": [96], 'a': [99, 129], 'lesser': [100], 'extent,': [101], "'autism": [102], 'spectrum': [103], "disorder',": [104], 'which': [106], 'was': [108, 126, 147], 'consensus': [109], 'across': [110], 'groups.': [112], 'groups': [114], 'disagreed,': [115], 'however,': [116], 'several': [121], 'terms.': [122], 'term': [124], "'autistic'": [125], 'by': [128, 140, 149, 155, 191], 'large': [130], 'percentage': [131], 'adults,': [134], 'family': [135], 'members/friends': [136], 'but': [139, 154], 'considerably': [141], 'fewer': [142, 156], 'professionals;': [143], "'person": [144], 'with': [145], "autism'": [146], 'almost': [150], 'half': [151], 'professionals': [153], 'adults': [158], 'parents.': [160], 'Qualitative': [161], 'analysis': [162], 'open-ended': [165], 'question': [166], 'revealed': [167], 'reasons': [169], 'underlying': [170], "respondents'": [171], 'These': [173], 'findings': [174], 'demonstrate': [175], 'no': [179], 'single': [180], 'universally': [187], 'accepted': [188], "UK's": [193], 'some': [198], 'disagreements': [199], 'appear': [200], 'deeply': [201], 'entrenched.': [202]}, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W2227393071', 'counts_by_year': [{'year': 2024, 'cited_by_count': 201}, {'year': 2023, 'cited_by_count': 253}, {'year': 2022, 'cited_by_count': 261}, {'year': 2021, 'cited_by_count': 284}, {'year': 2020, 'cited_by_count': 176}, {'year': 2019, 'cited_by_count': 129}, {'year': 2018, 'cited_by_count': 94}, {'year': 2017, 'cited_by_count': 66}, {'year': 2016, 'cited_by_count': 35}, {'year': 2015, 'cited_by_count': 7}], 'updated_date': '2024-12-20T20:06:40.237113', 'created_date': '2016-06-24'}