Get quick answers to your questions about the article from our AI researcher chatbot
{'id': 'https://openalex.org/W2166798126', 'doi': 'https://doi.org/10.15252/emmm.201405002', 'title': 'From the principles of genomic data sharing to the practices of data access committees', 'display_name': 'From the principles of genomic data sharing to the practices of data access committees', 'publication_year': 2015, 'publication_date': '2015-03-10', 'ids': {'openalex': 'https://openalex.org/W2166798126', 'doi': 'https://doi.org/10.15252/emmm.201405002', 'mag': '2166798126', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/25759363', 'pmcid': 'https://www.ncbi.nlm.nih.gov/pmc/articles/4492813'}, 'language': 'en', 'primary_location': {'is_oa': False, 'landing_page_url': 'https://doi.org/10.15252/emmm.201405002', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S163075119', 'display_name': 'EMBO Molecular Medicine', 'issn_l': '1757-4676', 'issn': ['1757-4676', '1757-4684'], 'is_oa': True, 'is_in_doaj': True, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319965', 'host_organization_name': 'Springer Nature', 'host_organization_lineage': ['https://openalex.org/P4310319965'], 'host_organization_lineage_names': ['Springer Nature'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, 'type': 'article', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': True, 'oa_status': 'green', 'oa_url': 'https://europepmc.org/articles/pmc4492813?pdf=render', 'any_repository_has_fulltext': True}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5071188722', 'display_name': 'Mahsa Shabani', 'orcid': 'https://orcid.org/0000-0001-7128-0474'}, 'institutions': [{'id': 'https://openalex.org/I99464096', 'display_name': 'KU Leuven', 'ror': 'https://ror.org/05f950310', 'country_code': 'BE', 'type': 'education', 'lineage': ['https://openalex.org/I99464096']}], 'countries': ['BE'], 'is_corresponding': False, 'raw_author_name': 'Mahsa Shabani', 'raw_affiliation_strings': ['Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven Belgium'], 'affiliations': [{'raw_affiliation_string': 'Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven Belgium', 'institution_ids': ['https://openalex.org/I99464096']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5013672213', 'display_name': 'Bartha Maria Knoppers', 'orcid': 'https://orcid.org/0000-0001-7004-2722'}, 'institutions': [{'id': 'https://openalex.org/I5023651', 'display_name': 'McGill University', 'ror': 'https://ror.org/01pxwe438', 'country_code': 'CA', 'type': 'education', 'lineage': ['https://openalex.org/I5023651']}], 'countries': ['CA'], 'is_corresponding': False, 'raw_author_name': 'Bartha Maria Knoppers', 'raw_affiliation_strings': ['Centre of Genomics and Policy McGill University Montreal QC Canada'], 'affiliations': [{'raw_affiliation_string': 'Centre of Genomics and Policy McGill University Montreal QC Canada', 'institution_ids': ['https://openalex.org/I5023651']}]}, {'author_position': 'last', 'author': {'id': 'https://openalex.org/A5033667365', 'display_name': 'Pascal Borry', 'orcid': 'https://orcid.org/0000-0002-4931-9560'}, 'institutions': [{'id': 'https://openalex.org/I99464096', 'display_name': 'KU Leuven', 'ror': 'https://ror.org/05f950310', 'country_code': 'BE', 'type': 'education', 'lineage': ['https://openalex.org/I99464096']}], 'countries': ['BE'], 'is_corresponding': False, 'raw_author_name': 'Pascal Borry', 'raw_affiliation_strings': ['Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven Belgium'], 'affiliations': [{'raw_affiliation_string': 'Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven Belgium', 'institution_ids': ['https://openalex.org/I99464096']}]}], 'countries_distinct_count': 2, 'institutions_distinct_count': 2, 'corresponding_author_ids': [], 'corresponding_institution_ids': [], 'apc_list': {'value': 5000, 'currency': 'USD', 'value_usd': 5000, 'provenance': 'doaj'}, 'apc_paid': None, 'fwci': 9.927, 'has_fulltext': True, 'fulltext_origin': 'pdf', 'cited_by_count': 54, 'citation_normalized_percentile': {'value': 0.999976, 'is_in_top_1_percent': True, 'is_in_top_10_percent': True}, 'cited_by_percentile_year': {'min': 96, 'max': 97}, 'biblio': {'volume': '7', 'issue': '5', 'first_page': '507', 'last_page': '509'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T10582', 'display_name': 'Ethical Considerations in Medical Research Participation', 'score': 0.9969, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, 'topics': [{'id': 'https://openalex.org/T10582', 'display_name': 'Ethical Considerations in Medical Research Participation', 'score': 0.9969, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, {'id': 'https://openalex.org/T11287', 'display_name': 'Genomic Landscape of Cancer and Mutational Signatures', 'score': 0.9731, 'subfield': {'id': 'https://openalex.org/subfields/1306', 'display_name': 'Cancer Research'}, 'field': {'id': 'https://openalex.org/fields/13', 'display_name': 'Biochemistry, Genetics and Molecular Biology'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, {'id': 'https://openalex.org/T11937', 'display_name': 'Data Sharing and Stewardship in Science', 'score': 0.9572, 'subfield': {'id': 'https://openalex.org/subfields/1710', 'display_name': 'Information Systems'}, 'field': {'id': 'https://openalex.org/fields/17', 'display_name': 'Computer Science'}, 'domain': {'id': 'https://openalex.org/domains/3', 'display_name': 'Physical Sciences'}}], 'keywords': [{'id': 'https://openalex.org/keywords/data-access', 'display_name': 'Data access', 'score': 0.73262584}, {'id': 'https://openalex.org/keywords/data-sharing', 'display_name': 'Data Sharing', 'score': 0.588535}, {'id': 'https://openalex.org/keywords/public-access', 'display_name': 'Public access', 'score': 0.43297467}], 'concepts': [{'id': 'https://openalex.org/C2779965156', 'wikidata': 'https://www.wikidata.org/wiki/Q5227350', 'display_name': 'Data sharing', 'level': 3, 'score': 0.8055826}, {'id': 'https://openalex.org/C47487241', 'wikidata': 'https://www.wikidata.org/wiki/Q5227230', 'display_name': 'Data access', 'level': 2, 'score': 0.73262584}, {'id': 'https://openalex.org/C182306322', 'wikidata': 'https://www.wikidata.org/wiki/Q1779371', 'display_name': 'Order (exchange)', 'level': 2, 'score': 0.5304113}, {'id': 'https://openalex.org/C12713177', 'wikidata': 'https://www.wikidata.org/wiki/Q1900281', 'display_name': 'Perspective (graphical)', 'level': 2, 'score': 0.47159705}, {'id': 'https://openalex.org/C41008148', 'wikidata': 'https://www.wikidata.org/wiki/Q21198', 'display_name': 'Computer science', 'level': 0, 'score': 0.4435736}, {'id': 'https://openalex.org/C144133560', 'wikidata': 'https://www.wikidata.org/wiki/Q4830453', 'display_name': 'Business', 'level': 0, 'score': 0.43306854}, {'id': 'https://openalex.org/C2982933515', 'wikidata': 'https://www.wikidata.org/wiki/Q104381823', 'display_name': 'Public access', 'level': 2, 'score': 0.43297467}, {'id': 'https://openalex.org/C2522767166', 'wikidata': 'https://www.wikidata.org/wiki/Q2374463', 'display_name': 'Data science', 'level': 1, 'score': 0.36691177}, {'id': 'https://openalex.org/C77088390', 'wikidata': 'https://www.wikidata.org/wiki/Q8513', 'display_name': 'Database', 'level': 1, 'score': 0.31132138}, {'id': 'https://openalex.org/C136764020', 'wikidata': 'https://www.wikidata.org/wiki/Q466', 'display_name': 'World Wide Web', 'level': 1, 'score': 0.28059715}, {'id': 'https://openalex.org/C71924100', 'wikidata': 'https://www.wikidata.org/wiki/Q11190', 'display_name': 'Medicine', 'level': 0, 'score': 0.12583312}, {'id': 'https://openalex.org/C10138342', 'wikidata': 'https://www.wikidata.org/wiki/Q43015', 'display_name': 'Finance', 'level': 1, 'score': 0.11184302}, {'id': 'https://openalex.org/C204787440', 'wikidata': 'https://www.wikidata.org/wiki/Q188504', 'display_name': 'Alternative medicine', 'level': 2, 'score': 0.0}, {'id': 'https://openalex.org/C142724271', 'wikidata': 'https://www.wikidata.org/wiki/Q7208', 'display_name': 'Pathology', 'level': 1, 'score': 0.0}, {'id': 'https://openalex.org/C154945302', 'wikidata': 'https://www.wikidata.org/wiki/Q11660', 'display_name': 'Artificial intelligence', 'level': 1, 'score': 0.0}], 'mesh': [{'descriptor_ui': 'D023281', 'descriptor_name': 'Genomics', 'qualifier_ui': 'Q000379', 'qualifier_name': 'methods', 'is_major_topic': True}, {'descriptor_ui': 'D033181', 'descriptor_name': 'Information Dissemination', 'qualifier_ui': 'Q000379', 'qualifier_name': 'methods', 'is_major_topic': True}, {'descriptor_ui': 'D023281', 'descriptor_name': 'Genomics', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D023281', 'descriptor_name': 'Genomics', 'qualifier_ui': 'Q000592', 'qualifier_name': 'standards', 'is_major_topic': False}, {'descriptor_ui': 'D017408', 'descriptor_name': 'Guidelines as Topic', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D033181', 'descriptor_name': 'Information Dissemination', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D033181', 'descriptor_name': 'Information Dissemination', 'qualifier_ui': 'Q000941', 'qualifier_name': 'ethics', 'is_major_topic': False}], 'locations_count': 7, 'locations': [{'is_oa': False, 'landing_page_url': 'https://doi.org/10.15252/emmm.201405002', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S163075119', 'display_name': 'EMBO Molecular Medicine', 'issn_l': '1757-4676', 'issn': ['1757-4676', '1757-4684'], 'is_oa': True, 'is_in_doaj': True, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319965', 'host_organization_name': 'Springer Nature', 'host_organization_lineage': ['https://openalex.org/P4310319965'], 'host_organization_lineage_names': ['Springer Nature'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, {'is_oa': True, 'landing_page_url': 'https://europepmc.org/articles/pmc4492813', 'pdf_url': 'https://europepmc.org/articles/pmc4492813?pdf=render', 'source': {'id': 'https://openalex.org/S4306400806', 'display_name': 'Europe PMC (PubMed Central)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1303153112', 'host_organization_name': 'European Bioinformatics Institute', 'host_organization_lineage': ['https://openalex.org/I1303153112'], 'host_organization_lineage_names': ['European Bioinformatics Institute'], 'type': 'repository'}, 'license': 'cc-by', 'license_id': 'https://openalex.org/licenses/cc-by', 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': True, 'landing_page_url': 'https://biblio.ugent.be/publication/8629775/file/8629776', 'pdf_url': 'https://biblio.ugent.be/publication/8629775/file/8629776', 'source': {'id': 'https://openalex.org/S4306400478', 'display_name': 'Ghent University Academic Bibliography (Ghent University)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I32597200', 'host_organization_name': 'Ghent University', 'host_organization_lineage': ['https://openalex.org/I32597200'], 'host_organization_lineage_names': ['Ghent University'], 'type': 'repository'}, 'license': 'cc-by', 'license_id': 'https://openalex.org/licenses/cc-by', 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': True, 'landing_page_url': 'http://hdl.handle.net/1854/LU-8629775', 'pdf_url': 'https://biblio.ugent.be/publication/8629775/file/8629776.pdf', 'source': {'id': 'https://openalex.org/S4306400478', 'display_name': 'Ghent University Academic Bibliography (Ghent University)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I32597200', 'host_organization_name': 'Ghent University', 'host_organization_lineage': ['https://openalex.org/I32597200'], 'host_organization_lineage_names': ['Ghent University'], 'type': 'repository'}, 'license': 'cc-by', 'license_id': 'https://openalex.org/licenses/cc-by', 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': True, 'landing_page_url': 'https://lirias.kuleuven.be/handle/123456789/491709', 'pdf_url': 'https://lirias.kuleuven.be/bitstream/123456789/491709/1/IT%2002-2015-%20DACs.pdf', 'source': {'id': 'https://openalex.org/S4306401954', 'display_name': 'Lirias (KU Leuven)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I99464096', 'host_organization_name': 'KU Leuven', 'host_organization_lineage': ['https://openalex.org/I99464096'], 'host_organization_lineage_names': ['KU Leuven'], 'type': 'repository'}, 'license': 'cc-by', 'license_id': 'https://openalex.org/licenses/cc-by', 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': True, 'landing_page_url': 'https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4492813', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S2764455111', 'display_name': 'PubMed Central', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/25759363', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': {'is_oa': True, 'landing_page_url': 'https://europepmc.org/articles/pmc4492813', 'pdf_url': 'https://europepmc.org/articles/pmc4492813?pdf=render', 'source': {'id': 'https://openalex.org/S4306400806', 'display_name': 'Europe PMC (PubMed Central)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1303153112', 'host_organization_name': 'European Bioinformatics Institute', 'host_organization_lineage': ['https://openalex.org/I1303153112'], 'host_organization_lineage_names': ['European Bioinformatics Institute'], 'type': 'repository'}, 'license': 'cc-by', 'license_id': 'https://openalex.org/licenses/cc-by', 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, 'sustainable_development_goals': [{'score': 0.57, 'display_name': 'Partnerships for the goals', 'id': 'https://metadata.un.org/sdg/17'}], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 18, 'referenced_works': ['https://openalex.org/W1539022519', 'https://openalex.org/W1964042040', 'https://openalex.org/W1984758855', 'https://openalex.org/W1988276417', 'https://openalex.org/W1990899344', 'https://openalex.org/W1991779435', 'https://openalex.org/W2007833428', 'https://openalex.org/W2041537520', 'https://openalex.org/W2074964079', 'https://openalex.org/W2121627353', 'https://openalex.org/W2122403180', 'https://openalex.org/W2131526736', 'https://openalex.org/W2152422024', 'https://openalex.org/W2164690942', 'https://openalex.org/W2214229571', 'https://openalex.org/W4285719527', 'https://openalex.org/W77675614', 'https://openalex.org/W80563288'], 'related_works': ['https://openalex.org/W4389950265', 'https://openalex.org/W4245475085', 'https://openalex.org/W3186174587', 'https://openalex.org/W2795549514', 'https://openalex.org/W2421443948', 'https://openalex.org/W2414507368', 'https://openalex.org/W2384892363', 'https://openalex.org/W2166798126', 'https://openalex.org/W2050921398', 'https://openalex.org/W1533949320'], 'abstract_inverted_index': {'Sharing': [0], 'genomic': [1, 17, 54], 'research': [2], 'data': [3, 18, 38, 42, 65], 'through': [4, 76], 'controlled-access': [5], 'databases': [6], 'has': [7], 'increased': [8], 'in': [9, 20], 'recent': [10], 'years.': [11], 'Policymakers': [12], 'and': [13, 29, 41, 48, 62], 'funding': [14], 'organizations': [15], 'endorse': [16], 'sharing': [19], 'order': [21], 'to': [22, 30, 53, 70], 'optimize': [23], 'the': [24, 32, 60, 72, 77], 'use': [25], 'of': [26, 35, 64, 74, 79], 'public': [27], 'funds': [28], 'increase': [31], 'statistical': [33], 'power': [34], 'databases.': [36], 'Well-established': [37], 'access': [39, 43, 52], 'arrangements': [40], 'committees': [44], '(DACs)-responsible': [45], 'for': [46, 51, 58], 'reviewing': [47], 'managing': [49], 'requests': [50], 'databases-are': [55], 'therefore': [56], 'central': [57], 'implementing': [59], 'policies': [61], 'principles': [63], 'sharing.': [66], 'This': [67], 'article': [68], 'aims': [69], 'investigate': [71], 'functionality': [73], 'DACs': [75], 'perspective': [78], 'existing': [80], 'practices.': [81]}, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W2166798126', 'counts_by_year': [{'year': 2024, 'cited_by_count': 4}, {'year': 2023, 'cited_by_count': 5}, {'year': 2022, 'cited_by_count': 5}, {'year': 2021, 'cited_by_count': 8}, {'year': 2020, 'cited_by_count': 2}, {'year': 2019, 'cited_by_count': 2}, {'year': 2018, 'cited_by_count': 5}, {'year': 2017, 'cited_by_count': 9}, {'year': 2016, 'cited_by_count': 12}, {'year': 2015, 'cited_by_count': 2}], 'updated_date': '2024-09-01T04:38:46.342029', 'created_date': '2016-06-24'}