Publication Information

{'id': 'https://openalex.org/W1489655346', 'doi': 'https://doi.org/10.1136/bmj.318.7190.1063', 'title': 'Can children and young people consent to be tested for adult onset genetic disorders? Commentary: Weighing burdens and benefits rather than competence', 'display_name': 'Can children and young people consent to be tested for adult onset genetic disorders? Commentary: Weighing burdens and benefits rather than competence', 'publication_year': 1999, 'publication_date': '1999-04-17', 'ids': {'openalex': 'https://openalex.org/W1489655346', 'doi': 'https://doi.org/10.1136/bmj.318.7190.1063', 'mag': '1489655346', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/10205110', 'pmcid': 'https://www.ncbi.nlm.nih.gov/pmc/articles/1115457'}, 'language': 'en', 'primary_location': {'is_oa': False, 'landing_page_url': 'https://doi.org/10.1136/bmj.318.7190.1063', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S192814187', 'display_name': 'BMJ', 'issn_l': '0959-8138', 'issn': ['0959-8138'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319945', 'host_organization_name': 'BMJ', 'host_organization_lineage': ['https://openalex.org/P4310319945'], 'host_organization_lineage_names': ['BMJ'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, 'type': 'review', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': True, 'oa_status': 'green', 'oa_url': 'https://europepmc.org/articles/pmc1115457?pdf=render', 'any_repository_has_fulltext': True}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5056651936', 'display_name': 'Donna Dickenson', 'orcid': 'https://orcid.org/0000-0002-0312-3204'}, 'institutions': [{'id': 'https://openalex.org/I47508984', 'display_name': 'Imperial College London', 'ror': 'https://ror.org/041kmwe10', 'country_code': 'GB', 'type': 'education', 'lineage': ['https://openalex.org/I47508984']}], 'countries': ['GB'], 'is_corresponding': False, 'raw_author_name': 'D. L Dickenson', 'raw_affiliation_strings': ['Department of Primary Health Care and General Practice, Imperial College of Science, Technology and Medicine, London W2 1PG.'], 'affiliations': [{'raw_affiliation_string': 'Department of Primary Health Care and General Practice, Imperial College of Science, Technology and Medicine, London W2 1PG.', 'institution_ids': ['https://openalex.org/I47508984']}]}, {'author_position': 'last', 'author': {'id': 'https://openalex.org/A5026169945', 'display_name': 'Gail Geller', 'orcid': 'https://orcid.org/0000-0003-4856-1942'}, 'institutions': [], 'countries': [], 'is_corresponding': False, 'raw_author_name': 'G. Geller', 'raw_affiliation_strings': [], 'affiliations': []}], 'institution_assertions': [], 'countries_distinct_count': 1, 'institutions_distinct_count': 1, 'corresponding_author_ids': [], 'corresponding_institution_ids': [], 'apc_list': None, 'apc_paid': None, 'fwci': 1.303, 'has_fulltext': True, 'fulltext_origin': 'ngrams', 'cited_by_count': 31, 'citation_normalized_percentile': {'value': 0.486577, 'is_in_top_1_percent': False, 'is_in_top_10_percent': False}, 'cited_by_percentile_year': {'min': 88, 'max': 89}, 'biblio': {'volume': '318', 'issue': '7190', 'first_page': '1063', 'last_page': '1066'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T14437', 'display_name': 'Ethics and Legal Issues in Pediatric Healthcare', 'score': 0.9976, 'subfield': {'id': 'https://openalex.org/subfields/2735', 'display_name': 'Pediatrics, Perinatology and Child Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, 'topics': [{'id': 'https://openalex.org/T14437', 'display_name': 'Ethics and Legal Issues in Pediatric Healthcare', 'score': 0.9976, 'subfield': {'id': 'https://openalex.org/subfields/2735', 'display_name': 'Pediatrics, Perinatology and Child Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}, {'id': 'https://openalex.org/T10769', 'display_name': 'BRCA gene mutations in cancer', 'score': 0.9964, 'subfield': {'id': 'https://openalex.org/subfields/1311', 'display_name': 'Genetics'}, 'field': {'id': 'https://openalex.org/fields/13', 'display_name': 'Biochemistry, Genetics and Molecular Biology'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, {'id': 'https://openalex.org/T10582', 'display_name': 'Ethics in Clinical Research', 'score': 0.9889, 'subfield': {'id': 'https://openalex.org/subfields/2739', 'display_name': 'Public Health, Environmental and Occupational Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}], 'keywords': [{'id': 'https://openalex.org/keywords/girl', 'display_name': 'Girl', 'score': 0.5182}, {'id': 'https://openalex.org/keywords/sister', 'display_name': 'Sister', 'score': 0.43342072}], 'concepts': [{'id': 'https://openalex.org/C100521375', 'wikidata': 'https://www.wikidata.org/wiki/Q2015382', 'display_name': 'Competence (human resources)', 'level': 2, 'score': 0.6710198}, {'id': 'https://openalex.org/C2780673598', 'wikidata': 'https://www.wikidata.org/wiki/Q285223', 'display_name': 'Genetic testing', 'level': 2, 'score': 0.5357223}, {'id': 'https://openalex.org/C2779134260', 'wikidata': 'https://www.wikidata.org/wiki/Q12136', 'display_name': 'Disease', 'level': 2, 'score': 0.52727586}, {'id': 'https://openalex.org/C2778047097', 'wikidata': 'https://www.wikidata.org/wiki/Q3031', 'display_name': 'Girl', 'level': 2, 'score': 0.5182}, {'id': 'https://openalex.org/C80227256', 'wikidata': 'https://www.wikidata.org/wiki/Q1124169', 'display_name': 'Genetic counseling', 'level': 2, 'score': 0.48725763}, {'id': 'https://openalex.org/C15744967', 'wikidata': 'https://www.wikidata.org/wiki/Q9418', 'display_name': 'Psychology', 'level': 0, 'score': 0.47612578}, {'id': 'https://openalex.org/C2777106239', 'wikidata': 'https://www.wikidata.org/wiki/Q595094', 'display_name': 'Sister', 'level': 2, 'score': 0.43342072}, {'id': 'https://openalex.org/C71924100', 'wikidata': 'https://www.wikidata.org/wiki/Q11190', 'display_name': 'Medicine', 'level': 0, 'score': 0.43079945}, {'id': 'https://openalex.org/C512399662', 'wikidata': 'https://www.wikidata.org/wiki/Q3505712', 'display_name': 'Family medicine', 'level': 1, 'score': 0.3456264}, {'id': 'https://openalex.org/C118552586', 'wikidata': 'https://www.wikidata.org/wiki/Q7867', 'display_name': 'Psychiatry', 'level': 1, 'score': 0.33284557}, {'id': 'https://openalex.org/C138496976', 'wikidata': 'https://www.wikidata.org/wiki/Q175002', 'display_name': 'Developmental psychology', 'level': 1, 'score': 0.33075634}, {'id': 'https://openalex.org/C187212893', 'wikidata': 'https://www.wikidata.org/wiki/Q123028', 'display_name': 'Pediatrics', 'level': 1, 'score': 0.32248348}, {'id': 'https://openalex.org/C199539241', 'wikidata': 'https://www.wikidata.org/wiki/Q7748', 'display_name': 'Law', 'level': 1, 'score': 0.1860373}, {'id': 'https://openalex.org/C77805123', 'wikidata': 'https://www.wikidata.org/wiki/Q161272', 'display_name': 'Social psychology', 'level': 1, 'score': 0.171049}, {'id': 'https://openalex.org/C54355233', 'wikidata': 'https://www.wikidata.org/wiki/Q7162', 'display_name': 'Genetics', 'level': 1, 'score': 0.10000962}, {'id': 'https://openalex.org/C142724271', 'wikidata': 'https://www.wikidata.org/wiki/Q7208', 'display_name': 'Pathology', 'level': 1, 'score': 0.0}, {'id': 'https://openalex.org/C86803240', 'wikidata': 'https://www.wikidata.org/wiki/Q420', 'display_name': 'Biology', 'level': 0, 'score': 0.0}, {'id': 'https://openalex.org/C17744445', 'wikidata': 'https://www.wikidata.org/wiki/Q36442', 'display_name': 'Political science', 'level': 0, 'score': 0.0}, {'id': 'https://openalex.org/C126322002', 'wikidata': 'https://www.wikidata.org/wiki/Q11180', 'display_name': 'Internal medicine', 'level': 1, 'score': 0.0}], 'mesh': [{'descriptor_ui': 'D030342', 'descriptor_name': 'Genetic Diseases, Inborn', 'qualifier_ui': 'Q000175', 'qualifier_name': 'diagnosis', 'is_major_topic': True}, {'descriptor_ui': 'D000293', 'descriptor_name': 'Adolescent', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D000328', 'descriptor_name': 'Adult', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D017668', 'descriptor_name': 'Age of Onset', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D002648', 'descriptor_name': 'Child', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D005817', 'descriptor_name': 'Genetic Counseling', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D033142', 'descriptor_name': 'Genetic Services', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D007258', 'descriptor_name': 'Informed Consent', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D033282', 'descriptor_name': 'Parental Consent', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D026706', 'descriptor_name': 'Paternalism', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D010344', 'descriptor_name': 'Patient Advocacy', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D026684', 'descriptor_name': 'Personal Autonomy', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D017410', 'descriptor_name': 'Practice Guidelines as Topic', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D018570', 'descriptor_name': 'Risk Assessment', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}], 'locations_count': 4, 'locations': [{'is_oa': False, 'landing_page_url': 'https://doi.org/10.1136/bmj.318.7190.1063', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S192814187', 'display_name': 'BMJ', 'issn_l': '0959-8138', 'issn': ['0959-8138'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319945', 'host_organization_name': 'BMJ', 'host_organization_lineage': ['https://openalex.org/P4310319945'], 'host_organization_lineage_names': ['BMJ'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, {'is_oa': True, 'landing_page_url': 'https://europepmc.org/articles/pmc1115457', 'pdf_url': 'https://europepmc.org/articles/pmc1115457?pdf=render', 'source': {'id': 'https://openalex.org/S4306400806', 'display_name': 'Europe PMC (PubMed Central)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1303153112', 'host_organization_name': 'European Bioinformatics Institute', 'host_organization_lineage': ['https://openalex.org/I1303153112'], 'host_organization_lineage_names': ['European Bioinformatics Institute'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': True, 'landing_page_url': 'https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115457', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S2764455111', 'display_name': 'PubMed Central', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/10205110', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': {'is_oa': True, 'landing_page_url': 'https://europepmc.org/articles/pmc1115457', 'pdf_url': 'https://europepmc.org/articles/pmc1115457?pdf=render', 'source': {'id': 'https://openalex.org/S4306400806', 'display_name': 'Europe PMC (PubMed Central)', 'issn_l': None, 'issn': None, 'is_oa': True, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1303153112', 'host_organization_name': 'European Bioinformatics Institute', 'host_organization_lineage': ['https://openalex.org/I1303153112'], 'host_organization_lineage_names': ['European Bioinformatics Institute'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': 'publishedVersion', 'is_accepted': True, 'is_published': True}, 'sustainable_development_goals': [], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 30, 'referenced_works': ['https://openalex.org/W1521768787', 'https://openalex.org/W1537902146', 'https://openalex.org/W1964585844', 'https://openalex.org/W1976887241', 'https://openalex.org/W2004174037', 'https://openalex.org/W2006973363', 'https://openalex.org/W2010719192', 'https://openalex.org/W2017148227', 'https://openalex.org/W2024508797', 'https://openalex.org/W2025219605', 'https://openalex.org/W2072599461', 'https://openalex.org/W2073949742', 'https://openalex.org/W2092313996', 'https://openalex.org/W2108974263', 'https://openalex.org/W2109928872', 'https://openalex.org/W2129583477', 'https://openalex.org/W2130145357', 'https://openalex.org/W2143626981', 'https://openalex.org/W2147596975', 'https://openalex.org/W2162354843', 'https://openalex.org/W2163149685', 'https://openalex.org/W2164895541', 'https://openalex.org/W2168927781', 'https://openalex.org/W223979454', 'https://openalex.org/W2319077694', 'https://openalex.org/W2424839516', 'https://openalex.org/W2772546281', 'https://openalex.org/W4253519219', 'https://openalex.org/W4301444774', 'https://openalex.org/W4301769879'], 'related_works': ['https://openalex.org/W4376872152', 'https://openalex.org/W4323293767', 'https://openalex.org/W4210704068', 'https://openalex.org/W3193657072', 'https://openalex.org/W2792273385', 'https://openalex.org/W2538130930', 'https://openalex.org/W2142174838', 'https://openalex.org/W2134629356', 'https://openalex.org/W2059304053', 'https://openalex.org/W2057624627'], 'abstract_inverted_index': {'#': [0], 'Can': [1], 'children': [2, 20], 'and': [3, 21, 80, 85, 100, 105, 186], 'young': [4, 22, 49, 89], 'people': [5, 23], 'consent': [6], 'to': [7, 26, 53, 61, 91, 146, 161, 218], 'be': [8, 27, 92], 'tested': [9, 28, 93, 128], 'for': [10, 29, 84, 130, 174], 'adult': [11, 31], 'onset': [12], 'genetic': [13, 33, 172], 'disorders?': [14, 34], '{#article-title-2}\n\nWhat': [15], 'should': [16, 38], 'we': [17], 'do': [18, 42], 'about': [19], 'who': [24, 157], 'want': [25], 'incurable,': [30], 'onset,': [32], 'In': [35, 66], 'particular,': [36], 'what': [37], 'a': [39, 72, 111], 'general': [40, 112], 'practitioner': [41], 'if': [43], 'he': [44], 'or': [45], 'she': [46, 149], 'believes': [47], 'the': [48, 56, 82, 88, 107, 138, 162, 175, 191, 196, 219], 'person': [50, 90], 'is': [51, 169], 'competent': [52], 'decide,': [54], 'but': [55, 78], 'regional': [57], 'genetics': [58, 198], 'unit': [59, 199], 'refuses': [60], 'test': [62, 205], 'anyone': [63, 206], 'under': [64, 207], '18?': [65], 'this': [67], 'article': [68], 'I': [69], 'discuss': [70], 'such': [71], 'case': [73, 99], '(drawn': [74], 'from': [75, 190], 'actual': [76], 'practice,': [77, 98], 'anonymised),': [79], 'consider': [81], 'arguments': [83], 'against': [86], 'allowing': [87], 'in': [94, 179], 'terms': [95], 'of': [96, 137], 'good': [97], 'statute': [101], 'law,': [102], 'empirical': [103], 'evidence,': [104], 'ethics.\n\n\n\nConsider': [106], 'following': [108], 'case.': [109], 'As': [110], 'practitioner,': [113], 'you': [114], 'are': [115], 'confronted': [116], 'with': [117], 'Alison,': [118], 'an': [119], 'intelligent': [120], '15\xa0year': [121], 'old': [122], 'girl': [123], 'whose': [124], 'father': [125], 'has': [126], 'recently': [127], 'positive': [129], "Huntington's": [131, 153], 'disease.': [132, 154, 192], 'His': [133], 'own': [134], 'mother': [135, 168, 185], 'died': [136, 189], 'condition': [139], 'before': [140], 'Alison': [141, 144, 209], 'was': [142], 'born.': [143], 'wants': [145], 'know': [147, 194], 'whether': [148], 'too': [150], 'will': [151, 203], 'develop': [152], 'Her': [155], 'parents,': [156], 'have': [158, 211], 'accompanied': [159], 'her': [160, 165, 184], 'surgery,': [163], 'support': [164], 'wish.': [166], "Alison's": [167], 'herself': [170], 'contemplating': [171], 'testing': [173], 'BRCA1': [176], 'gene': [177], 'implicated': [178], 'some': [180], 'breast': [181], 'cancers,': [182], 'because': [183], 'elder': [187], 'sister': [188], 'You': [193, 213], 'that': [195, 216], 'clinical': [197], 'serving': [200], 'your': [201], 'patients': [202], 'not': [204], '18,\xa0although': [208], 'can': [210], 'counselling.': [212], 'point': [214], 'out': [215], 'according': [217], "unit's": [220], 'careful': [221], 'protocol': [222], 'even': [223], 'those': [224], 'over': [225], '18\xa0must': [226], 'undergo': [227], 'counselling': [228], '…': [229]}, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W1489655346', 'counts_by_year': [{'year': 2021, 'cited_by_count': 1}, {'year': 2016, 'cited_by_count': 1}, {'year': 2012, 'cited_by_count': 1}], 'updated_date': '2024-12-10T04:23:27.231733', 'created_date': '2016-06-24'}