Publication Information

{'id': 'https://openalex.org/W4323293767', 'doi': 'https://doi.org/10.1002/jgc4.1688', 'title': "Patients' attitudes regarding genetic counseling before germline <i>BRCA1/2</i> pathogenic variants testing in Taiwan: A <scp>single‐country</scp>, <scp>multi‐center</scp>, <scp>patient‐reported</scp> outcome study", 'display_name': "Patients' attitudes regarding genetic counseling before germline <i>BRCA1/2</i> pathogenic variants testing in Taiwan: A <scp>single‐country</scp>, <scp>multi‐center</scp>, <scp>patient‐reported</scp> outcome study", 'publication_year': 2023, 'publication_date': '2023-03-05', 'ids': {'openalex': 'https://openalex.org/W4323293767', 'doi': 'https://doi.org/10.1002/jgc4.1688', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/36872635'}, 'language': 'en', 'primary_location': {'is_oa': False, 'landing_page_url': 'https://doi.org/10.1002/jgc4.1688', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S99574856', 'display_name': 'Journal of Genetic Counseling', 'issn_l': '1059-7700', 'issn': ['1059-7700', '1573-3599'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310320595', 'host_organization_name': 'Wiley', 'host_organization_lineage': ['https://openalex.org/P4310320595'], 'host_organization_lineage_names': ['Wiley'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, 'type': 'article', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': False, 'oa_status': 'closed', 'oa_url': None, 'any_repository_has_fulltext': False}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5078888182', 'display_name': 'Wen‐Ling Kuo', 'orcid': 'https://orcid.org/0000-0002-1145-8514'}, 'institutions': [{'id': 'https://openalex.org/I3020100970', 'display_name': 'Chang Gung Memorial Hospital', 'ror': 'https://ror.org/02verss31', 'country_code': 'TW', 'type': 'healthcare', 'lineage': ['https://openalex.org/I3020100970']}, {'id': 'https://openalex.org/I173093425', 'display_name': 'Chang Gung University', 'ror': 'https://ror.org/00d80zx46', 'country_code': 'TW', 'type': 'education', 'lineage': ['https://openalex.org/I173093425']}, {'id': 'https://openalex.org/I25846049', 'display_name': 'National Tsing Hua University', 'ror': 'https://ror.org/00zdnkx70', 'country_code': 'TW', 'type': 'education', 'lineage': ['https://openalex.org/I25846049']}], 'countries': ['TW'], 'is_corresponding': True, 'raw_author_name': 'Wen‐Ling Kuo', 'raw_affiliation_strings': ['Chang Gung University, Taoyuan, Taiwan', 'Division of Breast Surgery, Department of Surgery, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan City, Taiwan', 'School of Medicine, National Tsing Hua University, Hsinchu, Taiwan'], 'affiliations': [{'raw_affiliation_string': 'Division of Breast Surgery, Department of Surgery, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan City, Taiwan', 'institution_ids': ['https://openalex.org/I3020100970']}, {'raw_affiliation_string': 'Chang Gung University, Taoyuan, Taiwan', 'institution_ids': ['https://openalex.org/I173093425']}, {'raw_affiliation_string': 'School of Medicine, National Tsing Hua University, Hsinchu, Taiwan', 'institution_ids': ['https://openalex.org/I25846049']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5087411305', 'display_name': 'Po‐Han Lin', 'orcid': 'https://orcid.org/0000-0001-6066-398X'}, 'institutions': [{'id': 'https://openalex.org/I4210131804', 'display_name': 'National Taiwan University Hospital', 'ror': 'https://ror.org/03nteze27', 'country_code': 'TW', 'type': 'healthcare', 'lineage': ['https://openalex.org/I4210131804']}, {'id': 'https://openalex.org/I16733864', 'display_name': 'National Taiwan University', 'ror': 'https://ror.org/05bqach95', 'country_code': 'TW', 'type': 'education', 'lineage': ['https://openalex.org/I16733864']}], 'countries': ['TW'], 'is_corresponding': False, 'raw_author_name': 'Po‐Han Lin', 'raw_affiliation_strings': ['Department of Medical Genetics, National Taiwan University Hospital, Taipei, Taiwan', 'Institute of Medical Genomics and Proteomics, College of Medicine, National Taiwan University, Taipei, Taiwan'], 'affiliations': [{'raw_affiliation_string': 'Department of Medical Genetics, National Taiwan University Hospital, Taipei, Taiwan', 'institution_ids': ['https://openalex.org/I4210131804']}, {'raw_affiliation_string': 'Institute of Medical Genomics and Proteomics, College of Medicine, National Taiwan University, Taipei, Taiwan', 'institution_ids': ['https://openalex.org/I16733864']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5009124682', 'display_name': 'Meng‐Ting Peng', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I173093425', 'display_name': 'Chang Gung University', 'ror': 'https://ror.org/00d80zx46', 'country_code': 'TW', 'type': 'education', 'lineage': ['https://openalex.org/I173093425']}, {'id': 'https://openalex.org/I3020100970', 'display_name': 'Chang Gung Memorial Hospital', 'ror': 'https://ror.org/02verss31', 'country_code': 'TW', 'type': 'healthcare', 'lineage': ['https://openalex.org/I3020100970']}], 'countries': ['TW'], 'is_corresponding': False, 'raw_author_name': 'Meng‐Ting Peng', 'raw_affiliation_strings': ['Chang Gung University, Taoyuan, Taiwan', 'Division of Haematology-Oncology, Department of Internal Medicine, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan'], 'affiliations': [{'raw_affiliation_string': 'Chang Gung University, Taoyuan, Taiwan', 'institution_ids': ['https://openalex.org/I173093425']}, {'raw_affiliation_string': 'Division of Haematology-Oncology, Department of Internal Medicine, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan', 'institution_ids': ['https://openalex.org/I3020100970']}]}, {'author_position': 'middle', 'author': {'id': 'https://openalex.org/A5102505780', 'display_name': 'Chia‐Hui Chu', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I3020100970', 'display_name': 'Chang Gung Memorial Hospital', 'ror': 'https://ror.org/02verss31', 'country_code': 'TW', 'type': 'healthcare', 'lineage': ['https://openalex.org/I3020100970']}, {'id': 'https://openalex.org/I173093425', 'display_name': 'Chang Gung University', 'ror': 'https://ror.org/00d80zx46', 'country_code': 'TW', 'type': 'education', 'lineage': ['https://openalex.org/I173093425']}], 'countries': ['TW'], 'is_corresponding': False, 'raw_author_name': 'Chia‐Hui Chu', 'raw_affiliation_strings': ['Chang Gung University, Taoyuan, Taiwan', 'Division of Breast Surgery, Department of Surgery, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan City, Taiwan'], 'affiliations': [{'raw_affiliation_string': 'Division of Breast Surgery, Department of Surgery, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan City, Taiwan', 'institution_ids': ['https://openalex.org/I3020100970']}, {'raw_affiliation_string': 'Chang Gung University, Taoyuan, Taiwan', 'institution_ids': ['https://openalex.org/I173093425']}]}, {'author_position': 'last', 'author': {'id': 'https://openalex.org/A5018831764', 'display_name': 'Chia‐Wei Cho', 'orcid': None}, 'institutions': [], 'countries': ['TW'], 'is_corresponding': False, 'raw_author_name': 'Chia‐Wei Cho', 'raw_affiliation_strings': ['Medical Affair, AstraZeneca, Taipei, Taiwan'], 'affiliations': [{'raw_affiliation_string': 'Medical Affair, AstraZeneca, Taipei, Taiwan', 'institution_ids': []}]}], 'institution_assertions': [], 'countries_distinct_count': 1, 'institutions_distinct_count': 5, 'corresponding_author_ids': ['https://openalex.org/A5078888182'], 'corresponding_institution_ids': ['https://openalex.org/I3020100970', 'https://openalex.org/I173093425', 'https://openalex.org/I25846049'], 'apc_list': {'value': 3660, 'currency': 'USD', 'value_usd': 3660, 'provenance': 'doaj'}, 'apc_paid': None, 'fwci': 0.473, 'has_fulltext': False, 'cited_by_count': 1, 'citation_normalized_percentile': {'value': 0.638558, 'is_in_top_1_percent': False, 'is_in_top_10_percent': False}, 'cited_by_percentile_year': {'min': 68, 'max': 79}, 'biblio': {'volume': '32', 'issue': '4', 'first_page': '788', 'last_page': '797'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T10769', 'display_name': 'BRCA gene mutations in cancer', 'score': 0.9999, 'subfield': {'id': 'https://openalex.org/subfields/1311', 'display_name': 'Genetics'}, 'field': {'id': 'https://openalex.org/fields/13', 'display_name': 'Biochemistry, Genetics and Molecular Biology'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, 'topics': [{'id': 'https://openalex.org/T10769', 'display_name': 'BRCA gene mutations in cancer', 'score': 0.9999, 'subfield': {'id': 'https://openalex.org/subfields/1311', 'display_name': 'Genetics'}, 'field': {'id': 'https://openalex.org/fields/13', 'display_name': 'Biochemistry, Genetics and Molecular Biology'}, 'domain': {'id': 'https://openalex.org/domains/1', 'display_name': 'Life Sciences'}}, {'id': 'https://openalex.org/T10978', 'display_name': 'Prenatal Screening and Diagnostics', 'score': 0.9668, 'subfield': {'id': 'https://openalex.org/subfields/2735', 'display_name': 'Pediatrics, Perinatology and Child Health'}, 'field': {'id': 'https://openalex.org/fields/27', 'display_name': 'Medicine'}, 'domain': {'id': 'https://openalex.org/domains/4', 'display_name': 'Health Sciences'}}], 'keywords': [], 'concepts': [{'id': 'https://openalex.org/C80227256', 'wikidata': 'https://www.wikidata.org/wiki/Q1124169', 'display_name': 'Genetic counseling', 'level': 2, 'score': 0.9094424}, {'id': 'https://openalex.org/C2780673598', 'wikidata': 'https://www.wikidata.org/wiki/Q285223', 'display_name': 'Genetic testing', 'level': 2, 'score': 0.8324709}, {'id': 'https://openalex.org/C71924100', 'wikidata': 'https://www.wikidata.org/wiki/Q11190', 'display_name': 'Medicine', 'level': 0, 'score': 0.61934584}, {'id': 'https://openalex.org/C512399662', 'wikidata': 'https://www.wikidata.org/wiki/Q3505712', 'display_name': 'Family medicine', 'level': 1, 'score': 0.5360506}, {'id': 'https://openalex.org/C109825262', 'wikidata': 'https://www.wikidata.org/wiki/Q1139164', 'display_name': 'Germline', 'level': 3, 'score': 0.4973102}, {'id': 'https://openalex.org/C122980154', 'wikidata': 'https://www.wikidata.org/wiki/Q205555', 'display_name': 'Feeling', 'level': 2, 'score': 0.4837751}, {'id': 'https://openalex.org/C70410870', 'wikidata': 'https://www.wikidata.org/wiki/Q199906', 'display_name': 'Clinical psychology', 'level': 1, 'score': 0.35561734}, {'id': 'https://openalex.org/C15744967', 'wikidata': 'https://www.wikidata.org/wiki/Q9418', 'display_name': 'Psychology', 'level': 0, 'score': 0.2683226}, {'id': 'https://openalex.org/C54355233', 'wikidata': 'https://www.wikidata.org/wiki/Q7162', 'display_name': 'Genetics', 'level': 1, 'score': 0.26170316}, {'id': 'https://openalex.org/C126322002', 'wikidata': 'https://www.wikidata.org/wiki/Q11180', 'display_name': 'Internal medicine', 'level': 1, 'score': 0.19470447}, {'id': 'https://openalex.org/C77805123', 'wikidata': 'https://www.wikidata.org/wiki/Q161272', 'display_name': 'Social psychology', 'level': 1, 'score': 0.11564854}, {'id': 'https://openalex.org/C86803240', 'wikidata': 'https://www.wikidata.org/wiki/Q420', 'display_name': 'Biology', 'level': 0, 'score': 0.10096282}, {'id': 'https://openalex.org/C104317684', 'wikidata': 'https://www.wikidata.org/wiki/Q7187', 'display_name': 'Gene', 'level': 2, 'score': 0.0}], 'mesh': [{'descriptor_ui': 'D001943', 'descriptor_name': 'Breast Neoplasms', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D010051', 'descriptor_name': 'Ovarian Neoplasms', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D001290', 'descriptor_name': 'Attitude', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D019313', 'descriptor_name': 'BRCA1 Protein', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D019313', 'descriptor_name': 'BRCA1 Protein', 'qualifier_ui': 'Q000235', 'qualifier_name': 'genetics', 'is_major_topic': False}, {'descriptor_ui': 'D024682', 'descriptor_name': 'BRCA2 Protein', 'qualifier_ui': 'Q000235', 'qualifier_name': 'genetics', 'is_major_topic': False}, {'descriptor_ui': 'D024682', 'descriptor_name': 'BRCA2 Protein', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D001943', 'descriptor_name': 'Breast Neoplasms', 'qualifier_ui': 'Q000235', 'qualifier_name': 'genetics', 'is_major_topic': False}, {'descriptor_ui': 'D005260', 'descriptor_name': 'Female', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D005817', 'descriptor_name': 'Genetic Counseling', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D020022', 'descriptor_name': 'Genetic Predisposition to Disease', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D005820', 'descriptor_name': 'Genetic Testing', 'qualifier_ui': 'Q000379', 'qualifier_name': 'methods', 'is_major_topic': False}, {'descriptor_ui': 'D005820', 'descriptor_name': 'Genetic Testing', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D010051', 'descriptor_name': 'Ovarian Neoplasms', 'qualifier_ui': 'Q000235', 'qualifier_name': 'genetics', 'is_major_topic': False}, {'descriptor_ui': 'D013624', 'descriptor_name': 'Taiwan', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}], 'locations_count': 2, 'locations': [{'is_oa': False, 'landing_page_url': 'https://doi.org/10.1002/jgc4.1688', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S99574856', 'display_name': 'Journal of Genetic Counseling', 'issn_l': '1059-7700', 'issn': ['1059-7700', '1573-3599'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310320595', 'host_organization_name': 'Wiley', 'host_organization_lineage': ['https://openalex.org/P4310320595'], 'host_organization_lineage_names': ['Wiley'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/36872635', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': None, 'sustainable_development_goals': [{'id': 'https://metadata.un.org/sdg/3', 'display_name': 'Good health and well-being', 'score': 0.53}], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 33, 'referenced_works': ['https://openalex.org/W1929113708', 'https://openalex.org/W1973253351', 'https://openalex.org/W1991825197', 'https://openalex.org/W2007770143', 'https://openalex.org/W2019983958', 'https://openalex.org/W2045084898', 'https://openalex.org/W2071194784', 'https://openalex.org/W2123900946', 'https://openalex.org/W2127526423', 'https://openalex.org/W2135914193', 'https://openalex.org/W2165227514', 'https://openalex.org/W2167564136', 'https://openalex.org/W2171439968', 'https://openalex.org/W2254155967', 'https://openalex.org/W2287706376', 'https://openalex.org/W2460201102', 'https://openalex.org/W2605654091', 'https://openalex.org/W2627871710', 'https://openalex.org/W2768922916', 'https://openalex.org/W2799822070', 'https://openalex.org/W2961951317', 'https://openalex.org/W2969788639', 'https://openalex.org/W2969864773', 'https://openalex.org/W2988378933', 'https://openalex.org/W3004559804', 'https://openalex.org/W3082274149', 'https://openalex.org/W3128456160', 'https://openalex.org/W3165398058', 'https://openalex.org/W3199738633', 'https://openalex.org/W4205449333', 'https://openalex.org/W4229460511', 'https://openalex.org/W4252946660', 'https://openalex.org/W998118996'], 'related_works': ['https://openalex.org/W4376872152', 'https://openalex.org/W4323293767', 'https://openalex.org/W4313489189', 'https://openalex.org/W4210704068', 'https://openalex.org/W3187634630', 'https://openalex.org/W2792273385', 'https://openalex.org/W2538130930', 'https://openalex.org/W2134629356', 'https://openalex.org/W2059304053', 'https://openalex.org/W2006420298'], 'abstract_inverted_index': {'Germline': [0], 'pathogenic': [1, 26, 110, 118, 159], 'variants': [2, 27, 111, 119, 160], 'of': [3, 23, 41, 108, 116, 129, 147, 154, 157, 169, 224], 'BRCA1': [4], 'or': [5, 73], 'BRCA2': [6], 'cause': [7], 'hereditary': [8], 'breast': [9], 'and': [10, 21, 33, 43, 46, 65, 99, 120, 134, 166, 189, 212, 227, 236], 'ovarian': [11], 'cancer': [12, 63, 235], 'syndromes.': [13], 'The': [14, 152, 197], 'present': [15], 'study': [16], 'investigated': [17], 'the': [18, 31, 39, 86, 103, 106, 167, 191], "participants'": [19, 203], 'understanding': [20, 107, 115, 156, 171], 'awareness': [22], 'germline': [24, 92], 'BRCA1/2': [25, 93, 109, 117, 158, 207, 225], 'before': [28, 112], 'genetic': [29, 36, 50, 70, 79, 113, 123, 130, 138, 178, 186, 247], 'counseling,': [30, 114, 124, 179, 218], 'expectations': [32], 'obstacles': [34], 'for': [35, 91, 245], 'testing': [37, 51, 131, 187, 208, 213, 226], 'from': [38, 102, 162, 173], 'perspective': [40], 'participants': [42, 149, 181], 'their': [44, 47, 66, 194, 237], 'families,': [45, 238], 'attitudes': [48], 'towards': [49], 'after': [52, 88, 122], 'counseling.': [53], 'In': [54], 'this': [55], 'single-country,': [56], 'multicenter,': [57], 'non-interventional,': [58], 'patient-reported': [59], 'outcome': [60], 'study,': [61], 'untested': [62], 'patients': [64, 233], 'families': [67, 195], 'who': [68, 74], 'visited': [69], 'counseling': [71, 80, 90, 248], 'clinics': [72], 'wanted': [75], 'to': [76, 83, 126, 136, 164, 175, 184, 205], 'receive': [77, 137], 'pre-test': [78, 89, 217], 'were': [81, 140, 150, 182, 209], 'eligible': [82], 'fill': [84], 'in': [85, 231, 249], 'questionnaire': [87], 'testing.': [94], 'Demographic': [95], 'information,': [96], 'clinical': [97], 'characteristics,': [98], 'information': [100, 229], 'collected': [101], 'questionnaires,': [104], 'including': [105], 'feelings': [121], 'willingness': [125, 135, 204], 'share': [127, 190], 'results': [128, 192], 'with': [132, 193, 234], 'family,': [133], 'testing,': [139], 'summarized': [141], 'using': [142], 'descriptive': [143], 'statistics.': [144], 'A': [145], 'total': [146], '88': [148], 'enrolled.': [151], 'proportion': [153, 168], 'slight': [155], 'increased': [161, 172], '11.4%': [163], '67.0%,': [165], 'full': [170], '0%': [174], '8.0%.': [176], 'After': [177, 216], 'most': [180], 'willing': [183], 'undergo': [185, 206], '(87.5%)': [188], '(96.6%).': [196], 'main': [198], 'factors': [199], 'that': [200], 'may': [201, 240], 'affect': [202], 'management': [210], '(61.2%)': [211], 'costs': [214], '(25.9%).': [215], 'there': [219], 'was': [220], 'a': [221, 243], 'high': [222], 'acceptance': [223], 'in-family': [228], 'sharing': [230], 'Taiwanese': [232], 'which': [239], 'serve': [241], 'as': [242], 'reference': [244], 'implementing': [246], 'Taiwan.': [250]}, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W4323293767', 'counts_by_year': [{'year': 2023, 'cited_by_count': 1}], 'updated_date': '2024-12-10T18:46:29.936061', 'created_date': '2023-03-07'}