Hope for the Best, and Prepare for the Worst

Name: Work Video:
Duration: 3 min 30 s
Anthony L. Back; Robert M. Arnold; Timothy E. Quill
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550, 567, 589, 607, 633, 669, 689, 712, 735, 765, 846, 864, 889, 917, 934, 958], '2340733]': [238], 'CrossrefMedlineGoogle': [239, 265, 287, 318, 342, 464, 503, 518, 552, 569, 591, 714, 767, 891, 919, 936, 960], 'Scholar2.': [240], 'The': [241, 322, 699, 820, 832, 991, 1270, 1700, 2068, 2136, 2645], 'AM,': [242, 415], 'Hak': [243], 'T,': [244, 900], 'Koter': [245], 'G,': [246, 776], 'van': [247], 'Der': [248], 'Wal': [249], 'G.': [250], 'Collusion': [251], 'doctor-patient': [253, 601], 'communication': [254, 508, 1652, 1881, 2341, 2405, 2836, 3070], 'about': [255, 1001, 1308, 1525, 2709, 3079, 3089, 3292, 3431], 'imminent': [256], 'death:': [257], 'ethnographic': [259], 'study.': [260], 'BMJ.': [261], '2000;321:1376-81.': [262], '11099281]': [264], 'Scholar3.': [266], 'Ersek': [267], 'M,': [268, 527, 869], 'Kraybill': [269], 'BM,': [270], 'Pen': [271], 'AD.': [272], 'Factors': [273, 532], 'hindering': [274], "patients'": [275, 563, 755, 2245], 'use': [276], 'medications': [278], 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763, 887, 915], '1995;273:1553.': [500], '7739086]': [502], 'Scholar15.': [504], 'Maguire': [505, 573], 'P.': [506, 574], 'Improving': [507], 'Eur': [512], 'Cancer.': [514], '1999;35:1415-22.': [515], '10673972]': [517], 'Scholar16.': [519], 'Steinhauser': [520], 'KE,': [521], 'Christakis': [522, 718], 'NA,': [523], 'Clipp': [524], 'EC,': [525], 'McNeilly': [526], 'McIntyre': [528], 'L,': [529, 894], 'Tulsky': [530], 'JA.': [531], 'considered': [533], 'important': [534], 'life': [539, 701, 1519], 'by': [540, 578, 584, 1026, 1362, 2045, 2588, 3015, 3031, 3287, 3543], 'patients,': [541, 658], 'family,': [542], 'physicians,': [543], 'other': [545], 'providers.': [547], '2000;284:2476-82.': [549], '11074777]': [551], 'Scholar17.': [553], 'Singer': [554], 'PA,': [555], 'Martin': [556], 'DK,': [557], 'Kelner': [558], 'Quality': [560, 2065], 'end-of-life': [561, 654, 908, 1972, 2492, 2713, 3021, 3116, 3418], 'care:': [562, 1785, 2866, 3191, 3231, 3419], 'perspectives.': [564], 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'Krebs': [1246], 'doch': [1247], 'wiederkommt?': [1248], 'Situation': [1251], 'und': [1252], 'VerlustPrognostication': [1253], 'dementiaPalliative': [1255], 'own': [1259], 'identity,': [1260], 'through': [1261, 2289], 'autoethnography:': [1263], 'do': [1264], 'recognize': [1266], 'these': [1267], 'patterns?Hopeful': [1268], 'dying?': [1269], 'meanings': [1271], 'practice': [1273, 2438, 2899, 3076], 'family': [1279, 1435, 1976, 2543, 2876, 3322], 'meetingsAdvance': [1280], 'planning': [1282, 1467, 2696, 3505], 'adult': [1284], 'congenital': [1285, 2611], 'heart': [1286, 2350, 2612, 2727, 3233, 3457], 'disease:': [1287, 1457, 2613, 2701], 'Unique': [1288], 'unique': [1292], 'population3.': [1293], 'Practice': [1294, 1515], 'Benefits': [1296, 2955], 'Advance': [1298, 1377], 'PlanningCommunication': [1300], 'principles': [1301], 'practices': [1303], 'making': [1305, 1437, 1450], 'shared': [1306], 'decisions': [1307, 1439, 2493], 'renal': [1309], 'replacement': [1310], 'therapy:': [1311], 'review': [1313, 2733], 'literatureDevelopment': [1316], 'Oncolo-GIST': [1319], '("Giving': [1320], 'Information': [1321, 1335], 'Strategically': [1322], '&': [1323, 3539], 'Transparently")': [1324], 'Intervention': [1325], 'Manual': [1326], 'Oncologist': [1328, 1539, 3445], 'Skills': [1329, 2468], 'Training': [1330], 'Advanced': [1332, 1603, 1779, 1941, 2094, 2153, 2162, 2364, 2525, 2743, 3011, 3062, 3232, 3355], 'CommunicationHope-Colored': [1336], 'Glasses:': [1337], 'Perceptions': [1338, 1856, 3393], 'Prognosis': [1340, 1735, 2059, 2457, 3151], 'Among': [1341, 2178, 2739], 'Oncology': [1343, 2465], 'Their': [1346, 1863, 2771, 3288], 'ParentsJCS/JHFS': [1347], '2021': [1348], 'Statement': [1349], 'Cardiovascular': [1354, 2163], 'DiseasesThe': [1355], 'experiences': [1356, 1430, 1974], 'needs': [1358, 1433, 3093], 'couples': [1360], 'affected': [1361], 'prostate': [1363], 'aged': [1365], '65': [1366], 'under:': [1368], 'qualitative': [1370, 1447, 1656, 1673, 2326, 2826, 3333], 'studyRoles': [1371], 'Responsibilities': [1373, 2267], 'Nurses': [1375], 'Planning': [1379, 1389], 'SettingAdvance': [1387], 'Vorausschauende': [1391], 'VersorgungsplanungIllness': [1392], 'prognostic': [1394, 1968, 2299], 'understanding': [1395], 'hematologic': [1399], 'malignanciesModels': [1400], 'Delivery': [1404], 'Individuals': [1406], 'Cystic': [1408, 1410], 'Fibrosis:': [1409], 'Fibrosis': [1411], 'Foundation': [1412], 'Evidence-Informed': [1413], 'Consensus': [1414], 'GuidelinesNonbeneficial': [1415], 'Intensive': [1416, 1636, 1799, 2105, 2233, 2261, 2393, 3170, 3179, 3184], 'Care:': [1417, 1770, 2461, 3173, 3182, 3213, 3248], 'Misalignments': [1418], 'Between': [1419, 2272, 3152], 'Provider': [1420], 'Assessments': [1421], 'Benefit': [1423], 'Use': [1425, 1593, 1690], 'Invasive': [1427], 'TreatmentsThe': [1428], 'considerations,': [1429], 'support': [1432, 3097], 'members': [1436, 3323], 'admitted': [1442], 'major': [1444], 'stroke:': [1445], 'studyEnd-of-life': [1448], 'decision': [1449, 3117], 'context': [1453, 2568], 'chronic': [1455, 2698, 3146], 'life-limiting': [1456], 'concept': [1459], 'analysis': [1460, 1657], 'conceptual': [1462, 3415], 'modelHoping': [1463], 'best,': [1466], 'worst:': [1470], 'approach': [1473], 'Parkinson': [1475], 'during': [1477, 2078], 'COVID-19': [1479], 'pandemicEnd-of-Life': [1480], 'among': [1482, 1775, 1891, 1996, 2688], 'US': [1483], 'Adults': [1484, 2179], 'ESKD': [1486], 'Who': [1487, 1682, 3369], 'Were': [1488], 'Waitlisted': [1489], 'Received': [1491], 'Kidney': [1493, 2585], 'Transplant,': [1494], '2005–2014Identifying': [1495], 'Goals': [1496, 1849, 2035, 2100], 'CareChapitre': [1498], '23.': [1499], 'Soins': [1500], 'palliatifs': [1501, 2241], 'en': [1502, 1979, 2114, 2242, 2401, 3270], 'cancérologiePalliative': [1503], 'Lung': [1506, 2005, 2378, 2631, 3080], 'CancerPalliative': [1507, 1942], 'MCS': [1510], 'Patients:': [1511, 1532], 'Insights': [1512], 'into': [1513], 'Current': [1514], 'OutcomesEnd': [1517], 'meningiomaDecision-Making': [1524], 'Place': [1527], 'Concept': [1534], 'AnalysisThirty': [1535], 'Years': [1536, 3442], 'Later:': [1537, 3443], 'An': [1538, 1887, 2007, 3444], 'Reflects': [1540, 3446], "Kübler-Ross's": [1542], 'WorkReply': [1543], 'Hope,': [1545, 1824, 2507], 'optimism,': [1546], 'importance': [1549], 'caregivers': [1551], 'end‐of‐life': [1553, 3413], 'careAdding': [1554], 'Wider': [1556], 'Range': [1557], '"Hope': [1559], 'Worst"': [1567], 'Statement:': [1568], 'Preferences': [1569, 1619, 2177, 3161], 'CommunicationEmotions': [1576], 'room:': [1579], 'common': [1580], 'emotional': [1581], 'reactions': [1582], 'discussions': [1584, 1951], 'poor': [1586], 'tools': [1589], 'address': [1591], 'themThe': [1592], 'Expectancy': [1595], 'Empathy': [1597], 'Communicating': [1599, 1734], 'With': [1600, 1602, 1696, 1719, 2093, 2147, 2363, 2534, 2577, 2742, 3136, 3158, 3354], 'Breast': [1604], 'Cancer;': [1605], 'Observational': [1607], 'Clinician–Patient': [1610], 'ConsultationsThe': [1611], 'Effects': [1612, 2478], 'Adding': [1614], 'Reassurance': [1615], 'Statements:': [1616], 'Phrases': [1621], 'End-of-Life': [1623, 1831, 1867, 1945, 2108, 2237, 2625, 3002, 3499], 'DiscussionsFinding': [1624], 'Healing': [1627], 'Cure': [1629], 'Is': [1630, 1683, 1744, 1915, 2520, 2638, 2821, 2977, 3307], 'PossiblePalliative': [1632], 'Unit': [1638, 1801, 3172, 3181, 3186], '(ICU)PrognosticationKommunikation,': [1639], 'Partizipation,': [1640], 'PatientenorientierungAdvance': [1641], 'directives': [1642, 1669, 2131], 'haematology': [1644], 'departments:': [1645], "patient's": [1647], 'freedom': [1648], 'choice': [1650], 'families.': [1654], '35': [1659, 1675], 'written': [1660], "documentsQu'écrivent": [1661], 'les': [1662, 2130], 'personnes': [1663], 'atteintes': [1664], "d'hémopathies": [1665], 'malignes': [1666], 'dans': [1667], 'leurs': [1668], 'anticipées': [1670, 1978], '?': [1671], 'Analyse': [1672], 'de': [1674, 2116, 2120, 2127, 2399, 3273], 'écritsSupporting': [1676], 'Family': [1677, 1864, 2486, 2603, 2887], 'Decision-making': [1678], 'Child': [1681], 'Seriously': [1684, 2052], 'Ill:': [1685], 'Creating': [1686], 'Synchrony': [1687], 'ConnectionHospice': [1689], 'Heart': [1697, 2182], 'FailureNICU': [1698], 'Communication:': [1699], 'Many': [1701], 'Disguises': [1702], 'OpportunityCommunication': [1704], 'training': [1706], 'healthcare': [1708], 'professionals': [1709], 'people': [1712, 2141, 2348, 3511], 'who': [1713, 2992], 'have': [1714], 'cancerKeeping': [1715], 'Expectations': [1716], 'Check': [1718], 'InhibitorsSources': [1722], 'parental': [1724, 2316], 'pediatric': [1727, 2670], 'oncology"How': [1728], 'Much': [1729, 2599], 'Time': [1730], 'Do': [1731, 2962, 2966], 'I': [1732], 'Have?":': [1733], 'Era': [1738], 'Exceptional': [1740], 'RespondersWhen': [1741], 'Patient': [1743, 2655], 'Reluctant': [1745], 'To': [1746, 1753, 2652], 'Talk': [1747, 2863], 'About': [1748, 2152, 2264, 2522, 2864, 2970, 3150, 3402], 'It:': [1749], 'Dual': [1751], 'Framework': [1752, 1847, 2214], 'Focus': [1754], 'Living': [1756, 1902, 2741], 'Well': [1757], 'Tolerate': [1759], 'Possibility': [1761], 'DyingDistress': [1763], 'Due': [1764], 'Frequency,': [1771], 'Distribution,': [1772], 'Outcomes': [1774], 'Hospitalized': [1776], 'CancerThree': [1780], 'big': [1781], 'things': [1782], 'neuropalliative': [1784], 'Communication,': [1786], 'personhood': [1787], 'uncertaintyAddressing': [1789], "Patient's": [1791, 3464], 'MiraclePalliative': [1795], '(ICU)Goals': [1802], 'Difficult': [1806, 2470], 'ConversationsPalliative': [1807], 'Geriatric': [1810], 'Life-Limiting': [1814, 2578, 2776], 'IllnessHope': [1815], 'Context': [1818, 2501], 'CareSuffering,': [1823, 2506], 'HealingEnd': [1826], 'Life': [1828, 2755, 2813, 2976], 'SupportPalliative': [1829], 'CareA': [1832], 'Proposed': [1833], 'Model': [1834, 2450], 'Perinatal': [1836], 'CareHope': [1838, 2637], 'Age': [1843], 'MiraclesREMAP:': [1845], 'ConversationsQualitative': [1852], 'Terminally': [1858], 'Ill': [1859, 2053, 3138], 'Members': [1865], 'Regarding': [1866, 2999], 'Experiences': [1868, 2685], 'Focusing': [1869], 'SedationHow': [1872], 'should': [1873], 'realism': [1874], 'be': [1877], 'combined': [1878], 'physician–patient': [1880], 'online': [1888], 'focus-group': [1889], 'study': [1890, 2827], 'participants': [1892], 'without': [1895, 2281], 'Muslim': [1897], 'backgroundPharmacological': [1898], 'End-Stage': [1904, 2042], 'Chronic': [1905, 2004, 2535, 3006, 3298], 'Obstructive': [1906, 3007, 3299], 'Pulmonary': [1907, 3008, 3300], 'DiseaseThe': [1908, 2183], 'Liminal': [1909], 'ParallaxIs': [1912], 'There': [1913], 'Hope?': [1914], 'She': [1916], 'There?': [1917], 'Clinicians': [1921], 'Experience': [1922], 'InjuryPalliative': [1926], 'Liver': [1929, 2015, 2043, 2167, 2536], 'Transplantation:': [1930, 3081], 'Consult': [1933, 2019, 2171], 'SpecialistEarly': [1935], 'Considerations': [1946, 2528], 'PAH–CHDCommunicationFamily': [1950], 'life-sustaining': [1953], 'interventions': [1954], 'neurocritical': [1956], 'careA': [1957, 3414], 'Singular': [1958], 'Hope:': [1959, 3483], 'Discussion': [1962], 'Around': [1963], 'Surgery': [1965], 'Sometimes': [1966], 'FailsCommunicating': [1967], 'uncertainty': [1969], 'potential': [1971], 'contexts:': [1973], 'membersDirectives': [1977], 'dermato-oncologie': [1980], ':': [1981, 2118], 'situation': [1982], 'actuelle': [1983], 'et': [1984, 2129, 2404], 'perspectivesUsing': [1985], 'supportive': [1987, 3453], 'framework': [1989, 3416], 'understand': [1991], 'improve': [1993, 3229], 'AfricaInadequate': [2000], 'Disease.': [2006], 'Issue': [2008, 3522, 3533], 'InequalityPalliative': [2012], 'Transplantation,': [2016, 2168], 'SpecialistPalliative': [2021], 'PatientDeeper': [2026], 'Conversations': [2027, 2458, 2971], 'Need': [2028, 2205, 2209, 2647], 'Wait': [2030], 'Until': [2031], 'EndPalliative': [2033], 'CareAssessing': [2034], 'CarePalliative': [2037, 2906], 'DiseaseCommunications': [2044], 'Professionals': [2046], 'CareCommunication': [2049], 'Older,': [2051], 'PatientsTeaching': [2054], 'Colleagues': [2055], 'Discuss': [2058], 'as': [2060, 2748], 'Part': [2061], 'Hospital-Wide': [2064], 'Improvement': [2066], 'Project:': [2067], 'Positive': [2069], 'Impact': [2070, 3164], '90-Minute': [2073], "WorkshopParents'": [2074], 'Faith': [2075], 'Phase': [2082, 2958], 'Association': [2085], 'Long-Term': [2087], 'Parental': [2088], 'AdjustmentParental': [2089], 'Children': [2092, 3157], 'CancerBreaking': [2095], 'Bad': [2096, 2443, 3461], 'News': [2097, 2444], 'Discussing': [2099, 2809, 3100], 'UnitImproving': [2107], 'DiscussionsRespect': [2111], 'des': [2112, 2396], 'volontés': [2113], 'fin': [2115], 'vie': [2117], 'étude': [2119], 'faisabilité': [2121], "d'une": [2122], 'information': [2123], 'sur': [2124], 'la': [2125, 3274], 'personne': [2126], 'confiance': [2128], 'anticipéesFrom': [2132], 'hope:': [2135, 2832], 'experience': [2137, 2794], 'older': [2139], 'Chinese': [2140, 3277], 'advanced': [2143, 3075, 3456, 3501], 'cancerPreferences': [2144], "Parkinson's": [2148], 'Disease': [2149, 2586, 3009], 'Communication': [2151, 2200, 2213, 2423, 2467, 2554, 3353, 3406, 3479, 3484], 'PlanningPalliative': [2155], 'Hospice': [2158], 'DiseasePalliative': [2164], 'SpecialistEnd-of-Life': [2173], 'Treatment': [2176], 'Congenital': [2181], 'Changing': [2184], 'Role': [2185, 2772], 'ICUCurrent': [2191], 'State': [2192], 'Art': [2195], 'Science': [2197], 'Patient-Clinician': [2199], 'Progressive': [2202], 'Disease:': [2203], 'Know': [2207], 'Feel': [2211], 'KnownA': [2212], 'Dialysis': [2216], 'Decision-Making': [2217], 'Frail': [2219], 'Elderly': [2220, 2589], 'PatientsFamilies': [2221], 'transition': [2224, 3438], 'specialist': [2226], 'careDying': [2228], 'Dignity': [2230], 'UnitPalliative': [2235], 'StrokeSoins': [2240], 'cancérologieFactors': [2243], 'influencing': [2244, 3424], 'stroke': [2248], 'spinal': [2250], 'cord': [2251], 'injury:': [2252, 2306], 'narrative': [2254, 2735], 'reviewMedicolegal': [2255], 'aspects': [2256], 'UnitCommunicating': [2263], 'Prognosis:': [2265], 'Ethical': [2266, 2623], 'Pediatricians': [2269], 'ParentsCommunication': [2271], 'Doctor': [2273], 'PatientManaging': [2276], 'brain': [2277, 2305], 'metastases': [2278], 'patientswith': [2279], 'radiotherapy:': [2282], 'initial': [2283], 'lessonsfrom': [2284], 'team-based': [2286], 'consult': [2287], 'service': [2288], 'multidisciplinary': [2291], 'integrated': [2292], 'clinicParent': [2295], 'perceptions': [2296], 'early': [2298, 2617], 'encounters': [2300], 'following': [2301], "children's": [2302], 'severe': [2303], 'traumatic': [2304], "'Locked": [2307], 'this': [2310], 'cage': [2311], 'absolute': [2313], "horror'Trajectory": [2314], 'when': [2318, 3339], 'child': [2320], 'difficult-to-treat': [2322], 'cancer:': [2323, 2540], 'prospective': [2325], 'study"In': [2327], 'Beginning': [2329], '"\'I': [2333], 'want': [2335], 'burden': [2337], 'my': [2338], "family':": [2339], 'handling': [2340], 'challenges': [2342], 'geriatric': [2344], 'oncologyPalliative': [2345], 'failure:': [2351], 'Summary': [2352], 'current': [2354], 'evidence': [2355], 'future': [2357, 3342], 'directionEnd-of-Life': [2358], 'Discussions': [2360, 2574], "CancerPatient's": [2365], 'expression': [2366], 'illness': [2370, 2984], 'narratives': [2371], 'three': [2373], 'conditions:': [2375], 'meta-ethnographyAcute': [2377], 'Injury': [2379], 'Respiratory': [2382], 'Distress': [2383, 2753], 'Syndrome': [2384], 'Requiring': [2385], 'Tracheal': [2386], 'Intubation': [2387], 'Mechanical': [2389], 'Ventilation': [2390], 'UnitCoping': [2395], 'atteints': [2398], 'phase': [2402], 'médicaleThe': [2406], 'Cultivation': [2407], 'Through': [2411], 'Provision': [2413], 'Ambulatory': [2420], 'Setting:': [2421], 'GuideSurvival': [2424], 'times': [2425], 'women': [2427], 'breast': [2430], 'starting': [2432], 'first-line': [2433], 'routine': [2436], 'clinical': [2437, 3196], 'versus': [2439], 'contemporary': [2440], 'randomised': [2441], 'trialsBreaking': [2442], 'Counseling:': [2446], 'Applying': [2447], 'PEWTER': [2449], 'SettingLatent': [2454], 'Classes': [2455], 'Mixed-Methods': [2463], 'StudyImproving': [2464], "Nurses'": [2466, 2482, 2768], 'ConversationsBoth': [2471], 'Maintaining': [2472], 'Preparing': [2475, 2913], 'Death:': [2477, 2855, 2915], "Physicians'": [2480], 'Behaviors': [2483], 'Bereaved': [2485], "Members'": [2487], 'PerspectivesFamily': [2488], 'involvement': [2489], 'competent': [2495], 'intensive': [2496, 2996, 3025], 'patientsHope': [2498], 'HealingEthical': [2509], 'Issues': [2510, 2626, 2738, 3407, 3488], 'Stroke': [2512], 'PatientsBesonderheiten': [2513], 'pädiatrischen': [2515, 3040], 'Palliativversorgung': [2516, 3041], 'bei': [2517, 3042], 'besonderen': [2518, 3043], 'PatientengruppenWhat': [2519], 'Known': [2521], 'Prognostication': [2523], 'Illness?What': [2526], 'Special': [2527], 'Are': [2529, 3370], 'Needed': [2530], 'Treating': [2532], 'Disease?The': [2537], 'implications': [2541], 'finances': [2544], 'consequent': [2546], 'impact': [2547], 'lifestyle,': [2549], 'activities,': [2550], 'roles': [2551], 'relationshipsNephroTalk:': [2553], 'Tools': [2555], 'Enhance': [2557], 'Patient-Centered': [2558], 'Care"Our': [2559], 'best': [2560], 'cure."': [2564], 'advance': [2570, 3503], 'planningFacilitating': [2572], 'Goals-of-Care': [2573], 'Disease—Communication': [2579], 'NursesDiscussions': [2582], 'Trajectory': [2587], 'Nephrologists:': [2592], 'Qualitative': [2594, 2857], 'Study"Her': [2595], 'Husband': [2596], "Doesn't": [2597], 'Speak': [2598], 'English":': [2600], 'Conducting': [2601], 'InterpreterEnd-of-life': [2607], 'adults': [2609], 'call': [2615], 'communicationCaregivers': [2618], 'Cancer:': [2622, 3012, 3159], 'IssuesAddressing': [2624], 'Older': [2628], 'DiseasePain': [2632], 'CareEnd-of-Life': [2636, 3247], 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