Get quick answers to your questions about the article from our AI researcher chatbot
{'id': 'https://openalex.org/W1588986940', 'doi': 'https://doi.org/10.1007/s00103-007-0381-9', 'title': 'Networking for rare diseases: a necessity for Europe', 'display_name': 'Networking for rare diseases: a necessity for Europe', 'publication_year': 2007, 'publication_date': '2007-11-18', 'ids': {'openalex': 'https://openalex.org/W1588986940', 'doi': 'https://doi.org/10.1007/s00103-007-0381-9', 'mag': '1588986940', 'pmid': 'https://pubmed.ncbi.nlm.nih.gov/18026888'}, 'language': 'en', 'primary_location': {'is_oa': False, 'landing_page_url': 'https://doi.org/10.1007/s00103-007-0381-9', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S62458012', 'display_name': 'Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz', 'issn_l': '1436-9990', 'issn': ['1436-9990', '1437-1588'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319900', 'host_organization_name': 'Springer Science+Business Media', 'host_organization_lineage': ['https://openalex.org/P4310319965', 'https://openalex.org/P4310319900'], 'host_organization_lineage_names': ['Springer Nature', 'Springer Science+Business Media'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, 'type': 'review', 'type_crossref': 'journal-article', 'indexed_in': ['crossref', 'pubmed'], 'open_access': {'is_oa': False, 'oa_status': 'closed', 'oa_url': None, 'any_repository_has_fulltext': False}, 'authorships': [{'author_position': 'first', 'author': {'id': 'https://openalex.org/A5086155343', 'display_name': 'Ségolène Aymé', 'orcid': None}, 'institutions': [{'id': 'https://openalex.org/I154526488', 'display_name': 'Inserm', 'ror': 'https://ror.org/02vjkv261', 'country_code': 'FR', 'type': 'government', 'lineage': ['https://openalex.org/I154526488']}, {'id': 'https://openalex.org/I4210133579', 'display_name': 'Orphanet', 'ror': 'https://ror.org/03d3kf570', 'country_code': 'FR', 'type': 'other', 'lineage': ['https://openalex.org/I4210133579']}], 'countries': ['FR'], 'is_corresponding': False, 'raw_author_name': 'S Aymé', 'raw_affiliation_strings': ['Inserm, Orphanet Paris, Paris, France. [email protected]'], 'affiliations': [{'raw_affiliation_string': 'Inserm, Orphanet Paris, Paris, France. [email protected]', 'institution_ids': ['https://openalex.org/I154526488', 'https://openalex.org/I4210133579']}]}, {'author_position': 'last', 'author': {'id': 'https://openalex.org/A5019245834', 'display_name': 'J. Schmidtke', 'orcid': 'https://orcid.org/0000-0001-7739-398X'}, 'institutions': [], 'countries': [], 'is_corresponding': False, 'raw_author_name': 'J Schmidtke', 'raw_affiliation_strings': [], 'affiliations': []}], 'institution_assertions': [], 'countries_distinct_count': 1, 'institutions_distinct_count': 2, 'corresponding_author_ids': [], 'corresponding_institution_ids': [], 'apc_list': {'value': 2380, 'currency': 'EUR', 'value_usd': 2890, 'provenance': 'doaj'}, 'apc_paid': None, 'fwci': 0.753, 'has_fulltext': True, 'fulltext_origin': 'ngrams', 'cited_by_count': 117, 'citation_normalized_percentile': {'value': 0.917127, 'is_in_top_1_percent': False, 'is_in_top_10_percent': True}, 'cited_by_percentile_year': {'min': 97, 'max': 98}, 'biblio': {'volume': '50', 'issue': '12', 'first_page': '1477', 'last_page': '1483'}, 'is_retracted': False, 'is_paratext': False, 'primary_topic': {'id': 'https://openalex.org/T10804', 'display_name': 'Health Economics and Quality of Life Assessment', 'score': 0.9877, 'subfield': {'id': 'https://openalex.org/subfields/2002', 'display_name': 'Economics and Econometrics'}, 'field': {'id': 'https://openalex.org/fields/20', 'display_name': 'Economics, Econometrics and Finance'}, 'domain': {'id': 'https://openalex.org/domains/2', 'display_name': 'Social Sciences'}}, 'topics': [{'id': 'https://openalex.org/T10804', 'display_name': 'Health Economics and Quality of Life Assessment', 'score': 0.9877, 'subfield': {'id': 'https://openalex.org/subfields/2002', 'display_name': 'Economics and Econometrics'}, 'field': {'id': 'https://openalex.org/fields/20', 'display_name': 'Economics, Econometrics and Finance'}, 'domain': {'id': 'https://openalex.org/domains/2', 'display_name': 'Social Sciences'}}, {'id': 'https://openalex.org/T11792', 'display_name': 'Economics of Pharmaceutical Research and Development', 'score': 0.9619, 'subfield': {'id': 'https://openalex.org/subfields/2002', 'display_name': 'Economics and Econometrics'}, 'field': {'id': 'https://openalex.org/fields/20', 'display_name': 'Economics, Econometrics and Finance'}, 'domain': {'id': 'https://openalex.org/domains/2', 'display_name': 'Social Sciences'}}], 'keywords': [{'id': 'https://openalex.org/keywords/rare-disease', 'display_name': 'Rare disease', 'score': 0.6225591}, {'id': 'https://openalex.org/keywords/orphan-drug', 'display_name': 'Orphan drug', 'score': 0.5713684}, {'id': 'https://openalex.org/keywords/encyclopedia', 'display_name': 'Encyclopedia', 'score': 0.4664243}, {'id': 'https://openalex.org/keywords/healthcare-policies', 'display_name': 'Healthcare Policies', 'score': 0.429157}], 'concepts': [{'id': 'https://openalex.org/C2777683733', 'wikidata': 'https://www.wikidata.org/wiki/Q201456', 'display_name': 'Directory', 'level': 2, 'score': 0.7319221}, {'id': 'https://openalex.org/C2779701055', 'wikidata': 'https://www.wikidata.org/wiki/Q929833', 'display_name': 'Rare disease', 'level': 3, 'score': 0.6225591}, {'id': 'https://openalex.org/C75480439', 'wikidata': 'https://www.wikidata.org/wiki/Q1367466', 'display_name': 'Orphan drug', 'level': 2, 'score': 0.5713684}, {'id': 'https://openalex.org/C144133560', 'wikidata': 'https://www.wikidata.org/wiki/Q4830453', 'display_name': 'Business', 'level': 0, 'score': 0.5301631}, {'id': 'https://openalex.org/C148863701', 'wikidata': 'https://www.wikidata.org/wiki/Q5292', 'display_name': 'Encyclopedia', 'level': 2, 'score': 0.4664243}, {'id': 'https://openalex.org/C71924100', 'wikidata': 'https://www.wikidata.org/wiki/Q11190', 'display_name': 'Medicine', 'level': 0, 'score': 0.4631405}, {'id': 'https://openalex.org/C2779134260', 'wikidata': 'https://www.wikidata.org/wiki/Q12136', 'display_name': 'Disease', 'level': 2, 'score': 0.4629662}, {'id': 'https://openalex.org/C160735492', 'wikidata': 'https://www.wikidata.org/wiki/Q31207', 'display_name': 'Health care', 'level': 2, 'score': 0.4484751}, {'id': 'https://openalex.org/C138816342', 'wikidata': 'https://www.wikidata.org/wiki/Q189603', 'display_name': 'Public health', 'level': 2, 'score': 0.41265982}, {'id': 'https://openalex.org/C39549134', 'wikidata': 'https://www.wikidata.org/wiki/Q133080', 'display_name': 'Public relations', 'level': 1, 'score': 0.39125103}, {'id': 'https://openalex.org/C17744445', 'wikidata': 'https://www.wikidata.org/wiki/Q36442', 'display_name': 'Political science', 'level': 0, 'score': 0.35816318}, {'id': 'https://openalex.org/C50522688', 'wikidata': 'https://www.wikidata.org/wiki/Q189833', 'display_name': 'Economic growth', 'level': 1, 'score': 0.32359546}, {'id': 'https://openalex.org/C159110408', 'wikidata': 'https://www.wikidata.org/wiki/Q121176', 'display_name': 'Nursing', 'level': 1, 'score': 0.15255639}, {'id': 'https://openalex.org/C60644358', 'wikidata': 'https://www.wikidata.org/wiki/Q128570', 'display_name': 'Bioinformatics', 'level': 1, 'score': 0.1327562}, {'id': 'https://openalex.org/C41008148', 'wikidata': 'https://www.wikidata.org/wiki/Q21198', 'display_name': 'Computer science', 'level': 0, 'score': 0.123192996}, {'id': 'https://openalex.org/C142724271', 'wikidata': 'https://www.wikidata.org/wiki/Q7208', 'display_name': 'Pathology', 'level': 1, 'score': 0.0}, {'id': 'https://openalex.org/C199539241', 'wikidata': 'https://www.wikidata.org/wiki/Q7748', 'display_name': 'Law', 'level': 1, 'score': 0.0}, {'id': 'https://openalex.org/C162324750', 'wikidata': 'https://www.wikidata.org/wiki/Q8134', 'display_name': 'Economics', 'level': 0, 'score': 0.0}, {'id': 'https://openalex.org/C86803240', 'wikidata': 'https://www.wikidata.org/wiki/Q420', 'display_name': 'Biology', 'level': 0, 'score': 0.0}, {'id': 'https://openalex.org/C111919701', 'wikidata': 'https://www.wikidata.org/wiki/Q9135', 'display_name': 'Operating system', 'level': 1, 'score': 0.0}], 'mesh': [{'descriptor_ui': 'D019058', 'descriptor_name': 'Community Networks', 'qualifier_ui': 'Q000458', 'qualifier_name': 'organization & administration', 'is_major_topic': True}, {'descriptor_ui': 'D016208', 'descriptor_name': 'Databases, Factual', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D020407', 'descriptor_name': 'Internet', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D011159', 'descriptor_name': 'Population Surveillance', 'qualifier_ui': 'Q000379', 'qualifier_name': 'methods', 'is_major_topic': True}, {'descriptor_ui': 'D035583', 'descriptor_name': 'Rare Diseases', 'qualifier_ui': 'Q000453', 'qualifier_name': 'epidemiology', 'is_major_topic': True}, {'descriptor_ui': 'D012042', 'descriptor_name': 'Registries', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': True}, {'descriptor_ui': 'D019058', 'descriptor_name': 'Community Networks', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D005062', 'descriptor_name': 'European Union', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D006801', 'descriptor_name': 'Humans', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D011159', 'descriptor_name': 'Population Surveillance', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}, {'descriptor_ui': 'D035583', 'descriptor_name': 'Rare Diseases', 'qualifier_ui': 'Q000145', 'qualifier_name': 'classification', 'is_major_topic': False}, {'descriptor_ui': 'D035583', 'descriptor_name': 'Rare Diseases', 'qualifier_ui': '', 'qualifier_name': None, 'is_major_topic': False}], 'locations_count': 2, 'locations': [{'is_oa': False, 'landing_page_url': 'https://doi.org/10.1007/s00103-007-0381-9', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S62458012', 'display_name': 'Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz', 'issn_l': '1436-9990', 'issn': ['1436-9990', '1437-1588'], 'is_oa': False, 'is_in_doaj': False, 'is_core': True, 'host_organization': 'https://openalex.org/P4310319900', 'host_organization_name': 'Springer Science+Business Media', 'host_organization_lineage': ['https://openalex.org/P4310319965', 'https://openalex.org/P4310319900'], 'host_organization_lineage_names': ['Springer Nature', 'Springer Science+Business Media'], 'type': 'journal'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}, {'is_oa': False, 'landing_page_url': 'https://pubmed.ncbi.nlm.nih.gov/18026888', 'pdf_url': None, 'source': {'id': 'https://openalex.org/S4306525036', 'display_name': 'PubMed', 'issn_l': None, 'issn': None, 'is_oa': False, 'is_in_doaj': False, 'is_core': False, 'host_organization': 'https://openalex.org/I1299303238', 'host_organization_name': 'National Institutes of Health', 'host_organization_lineage': ['https://openalex.org/I1299303238'], 'host_organization_lineage_names': ['National Institutes of Health'], 'type': 'repository'}, 'license': None, 'license_id': None, 'version': None, 'is_accepted': False, 'is_published': False}], 'best_oa_location': None, 'sustainable_development_goals': [{'score': 0.53, 'id': 'https://metadata.un.org/sdg/17', 'display_name': 'Partnerships for the goals'}], 'grants': [], 'datasets': [], 'versions': [], 'referenced_works_count': 2, 'referenced_works': ['https://openalex.org/W1987949488', 'https://openalex.org/W2070919670'], 'related_works': ['https://openalex.org/W4390660638', 'https://openalex.org/W4385476802', 'https://openalex.org/W3213046642', 'https://openalex.org/W3156933552', 'https://openalex.org/W3005215717', 'https://openalex.org/W2290831848', 'https://openalex.org/W2225851979', 'https://openalex.org/W2189494653', 'https://openalex.org/W2048432608', 'https://openalex.org/W1497104987'], 'abstract_inverted_index': None, 'cited_by_api_url': 'https://api.openalex.org/works?filter=cites:W1588986940', 'counts_by_year': [{'year': 2024, 'cited_by_count': 6}, {'year': 2023, 'cited_by_count': 7}, {'year': 2022, 'cited_by_count': 5}, {'year': 2021, 'cited_by_count': 8}, {'year': 2020, 'cited_by_count': 7}, {'year': 2019, 'cited_by_count': 14}, {'year': 2018, 'cited_by_count': 6}, {'year': 2017, 'cited_by_count': 8}, {'year': 2016, 'cited_by_count': 8}, {'year': 2015, 'cited_by_count': 8}, {'year': 2014, 'cited_by_count': 5}, {'year': 2013, 'cited_by_count': 9}, {'year': 2012, 'cited_by_count': 10}], 'updated_date': '2024-09-17T14:08:18.278993', 'created_date': '2016-06-24'}